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Clinical research at the I-Motion Institute aims to discover ways to improve the management and treatment of neuromuscular and neurological rare diseases in children. Clinical trials may involve new medicaments, new assessment and management techniques.

Since its opening in June 2015, the I-Motion Institute’s activity has resulted in an increasing number of clinical trials with the cumulative participation of 350 patients.

At the I-Motion Institute, about 20 clinical trials are currently ongoing or in preparation, including about ten neuromuscular diseases (Duchenne muscular dystrophy, spinal muscular atrophy, myotubular myopathy, etc.) or neurological (mucopolysaccharidosis). This includes therapeutic trials, international natural history studies and non-therapeutic intervention studies (validation of evaluation devices).

These trials, mostly international, are promoted by industrial partners, laboratories of AFM-Telethon (Genethon, Institute of Myology …) or AP-HP (Paris hospitals).

For further informations on clinical trials in neuromuscular and neurological rare diseases on adults, please visit Adult I-Motion.

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