PUL and RULM
The PUL (Performance of the upper limb) test is used to specifically assess the functions of the upper limbs of patients. It was created primarily for people with dystrophinopathies.
It is a scale that measures changes in upper limb motor function over time, even when the patient loses walking ability. It takes into account muscle strength, growth and the presence of muscle contractures.
RULM (for Revised Upper Limb Module) has been validated in children with infantile spinal muscular atrophy, but can also be used in other neuromuscular pathologies.