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2023, every gesture counts

Dear patients and their families,Dear donors,Dear partners, All the teams and collaborators of the Institute of Myology send you their best wishes for happiness and success and wish you excellent health. May this new year, full of promise, be synonymous with progress and success and enable us to accomplish the projects we cherish. We would … Continued
05 January 2023

SAPPHIRE trial starts at I-Motion

The SAPPHIRE trial is an international, randomised, double-blind, placebo-controlled phase III trial that will evaluate the effects of a dual treatment : apitegromab (an anti-myostatin developed by Scholar Rock) injected intravenously every 4 weeks for one year, in addition to treatment with nusinersen or risdiplam, in non-walking patients with SMA type II or III, 156 … Continued
30 November 2022

December 2 and 3: ready for the Telethon!

You live abroad and want to play a part in the Telethon? Join the Telethon for French people abroad and help us break records of mobilization around the world!  On December 2 and 3, 2022, the Telethon will rally together millions of French people to support research and enable the AFM-Telethon to fulfill its missions … Continued
08 November 2022

The INCEPTUS study confirms the frequency of liver damage in X-linked myotubular myopathy

The international INCEPTUS study, a natural history study prior to the ASPIRO gene therapy trial to which I-Motion contributed, involved 34 children under 4 years of age with X-linked myotubular myopathy on respiratory support. During a median follow-up of 13 months (from 5 months to more than 2.5 years), there were three deaths (from inhalation … Continued
11 October 2022

The Telethon runs from Dec 3rd to 4th

The 35th Telethon will kick off on Friday December 3rd at 6:45 p.m. on France2.  Families, researchers, volunteers, partners… all are ready to organize the 35th Telethon! A crucial event for patients and their family, and for the whole of medicine.  In 35 years, the Telethon changed everything! Year after year, fervent popular support and … Continued
23 November 2021
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