Breaking news
Together, Stronger in 2026!
The year 2025 marked a major turning point for our project to create the world’s first foundation dedicated to muscle, the Myology Foundation. This milestone was symbolized by the ceremonial laying of the cornerstone of our future building on June 17th, and by the ten-year commitment of our first pioneering partner, CARAC, a mutual organization specializing in savings, retirement, and provident insurance. This … Continued
09 February 2026
Dr Andreea Seferian at the 29th WMS Congress
The 29th International Congress of the World Muscle Society (WMS) will be held from October 8 to 12, 2024 in Prague, Czech Republic. The Institute of Myology will be very well represented, with many scientific and clinical experts present to discuss clinical and fundamental research topics. Dr Andreea Seferian, clinician at I-Motion, will be presenting … Continued
04 October 2024
Telethon 2024: Building treatments, fighting disease!
On 29 and 30 November 2024, the Telethon will shine out across France to support the fight of families and researchers against rare diseases. Find out more about the ambassador families who will be speaking out on behalf of people with rare diseases, and about Mika, the patron of the event, and the ambassador towns … Continued
18 September 2024
Atamyo Therapeutics obtains authorisation to launch a gene therapy clinical trial in limb-girdle muscular dystrophy linked to SGCG
Following several proofs of concept, Atamyo Therapeutics, a spin-off from Geenethon, is to start a new gene therapy trial in patients suffering from limb-girdle muscular dystrophy (LGMD) R5 linked to SGCG (gamma-sarcoglycanopathy). Its aim is to test the safety, pharmacodynamics and efficacy of ATA-200, a product resulting from the work of Isabelle Richard, a researcher … Continued
08 April 2024
Vianney, mentor of the Telethon, on 8 & 9 December
After Matt Pokora, Soprano and Kev Adams, it’s singer and composer Vianney’s turn to join forces with researchers, families and thousands of volunteers across France in the fight against rare diseases on 8 and 9 December 2023. The ambassador families for the next Telethon reflect the victories won thanks to you, against diseases that were once incurable, and … Continued
13 September 2023
