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1680 news items
Research
Plasma proteomics studies to assess the clinical manifestations and tissue damage associated with certain inflammatory myopathies
On 06/10/2026
An international consortium of researchers, including a French team, analysed the proteomic profiles of 201 patients seen in Stockholm who were suffering from inflammatory myopathy:…
Patient care
VPPI does indeed appear to have a positive effect on chest growth in children with type I SMA
On 06/10/2026
A French retrospective study assessed the effect of intermittent positive pressure ventilation (IPPV) using the Alpha 300® in seven children with type I spinal muscular…
Research
Autoimmune conditions that test positive for anti-Ku antibodies carry a significant risk of pulmonary complications
On 05/10/2026
Clinicians from ten centres within the Assistance-Publique Hôpitaux de Paris (APHP) compiled and compared the clinical and laboratory data of 154 adults with positive anti-Ku…
Research
At what levels are CPK levels actually considered pathological?
On 05/10/2026
British and Canadian researchers have sought to establish non-pathogenicity reference ranges for creatine phosphokinase (CPK) levels measured in routine clinical practice: According to the authors,…
Patient care
Incorporating pool-based exercises into the management of Steinert disease
On 02/10/2026
In a Canadian study, 22 adults with Steinert’s disease (myotonic dystrophy type 1 or MD1) were randomised into groups for either aquatic or land-based training,…
Patient care
Update to the national strategy for the genetic diagnosis of myopathies by Filnemus
On 01/10/2026
The French Rare Health Care for Neuromuscular Diseases Network (Filnemus) has published an update to its strategy for the genetic diagnosis of neuromuscular diseases, including…
Research
Gefurulimab successfully completes Phase III trials in myasthenia gravis with anti-RACh+ antibodies
On 01/10/2026
The Phase III PREVAIL trial evaluated gefurulimab (or ALXN1720) against a placebo in 20 countries, including France, in 249 adults with a generalised form of…
Research
Initial results from the Phase III trial of del-desiran in Steinert disease
On 29/09/2026
In September 2026, Novartis announced the initial results of the Phase III HARBOR trial evaluating delpacibart andedesiran (del-desiran or AOC 1001) in type 1 myotonic…
Patient care
Diabetes is more common in late-onset dermatomyositis, regardless of corticosteroid use
On 24/09/2026
A retrospective analysis was carried out using the medical records of 434 patients with late-onset dermatomyositis, matched with a control cohort. These results confirm the…
Research
An antisense strategy to specifically target one of the mutations responsible for FOP
On 23/09/2026
Canadian researchers have developed antisense oligonucleotides (DNA/RNA gapmers) designed to selectively target the R206H mutation in the ACVR1 gene – which is most commonly responsible…
Events
21 September marks World Myositis Day
On 21/09/2026
Today, 21 September 2026, marks the 25th International Myositis Awareness Day, organised by the Myositis Association 1 person in 7,000 has myositis worldwide Also known as ‘inflammatory myopathies’, myositis is linked to inflammation of an autoimmune origin:…
Events
M&M’s – Muscle Monday Seminar – 21 sept. – Dr Marzia Rossato (Italy)
On 15/09/2026
Sequencing Technologies: Opportunities from Whole-Genome to Targeted Analysis of Complex Genomic Variants and Epigenetic Modifications Monday 21 September 2026 – noon-1pm Dr Marzia Rossato (University of…
Research
Diaphragmatic ultrasound: a promising biomarker for the risk of respiratory complications in Steinert myotonic dystrophy
On 15/09/2026
French clinicians investigated diaphragmatic function in patients with Steinert’s myotonic dystrophy (DM1) using an ultrasound method, which is by definition non-invasive: The authors highlight the…
Events
The Institute’s REDs team is supporting International Myotonic Dystrophy Awareness Day
On 15/09/2026
Today, 15 September 2026, marks the 5th International Myotonic Dystrophy (MD) Awareness Day. The aim is to raise awareness amongst the medical profession, policymakers and…
Events
Fête de la science from 5 to 10 October 2026
On 14/09/2026
Organised annually by the Ministry for Higher Education, Research and Innovation, this event aims to enable everyone to discover the world of science and meet…
Events
MYOLOGY 2027: registration and abstract submission are now open
On 14/09/2026
The 9th International Congress of Myology, MYOLOGY 2027, will take place in Strasbourg from 10 to 13 May 2027. Throughout the four days, leading international…
Events
The teams from the Institute to attend the WMS conference
On 14/09/2026
The 31st International Congress of the World Muscle Society (WMS) will take place from 29 September to 3 October 2026 in Hiroshima, Japan. Experts from…
Events
The Institut de Myologie Association is partnering with “Septembre Bouge”, an initiative to promote daily physical activity and sport
On 11/09/2026
In September 2026, France is getting active with the “Septembre Bouge” campaign. Organised jointly by the Ministry of Sport, Youth and Associations, and the Ministry…
Events
2026 edition of the ‘1,000 researchers in schools’ campaign
On 10/09/2026
Now in its 14th year, the ‘1,000 Researchers in Schools in France and Abroad’ initiative will take place from 2 November to 4 December in…