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1670 news items
Events
ERN EURO-NMD webinar, 4 June: Prof. Kleopa Kleopas (Cyprus)
On 29/05/2026
Episode 6 – Nerve Pathology in Neuropathy Models (in EURO-NMD Neuropathology Webinar Series) Thursday 4 June 2026 – 16:00-17:00 Paris time Speaker: Prof. Kleopa Kleopas (the…
Research
In some forms of myositis, a decline in vital capacity during the first year is a poor prognostic sign
On 29/05/2026
American rheumatologists have investigated myositis complicated by interstitial lung disease, focusing in particular on the predictive value of respiratory function measurements over time: a cohort…
Research
CAR-T cells are effective in reducing autoantibodies in myasthenia gravis
On 29/05/2026
German researchers have developed and tested CAR-T cells using serum from patients with myasthenia gravis: this novel cell therapy aimed to enable effector cells to…
Research
A comparative analysis of antibody assays in a large Brazilian cohort of myositis patients
On 28/05/2026
Rheumatologists reviewed the clinical and immunological data of 351 adults diagnosed with inflammatory myopathy, with the aim of determining the prevalence of antinuclear antibodies by…
Research
Tools to better understand the deterioration of walking in hereditary or acquired neuropathies
On 27/05/2026
Researchers in Lille studied gait parameters in patients with Charcot-Tooth disease type 1A (33) and chronic inflammatory demyelinating polyneuropathy (CIDP) (31) under specific conditions: their…
Events
Institute seminar – 19 June – Yin Loon Lee (Singapore)
On 27/05/2026
Nucleus-cytoskeleton coupling in development and disease Friday 19 June 2026 – 10h30 – Auditorium of the Institute of Myology Yin Loon Lee, PhD (Group…
Research
The MG-ADL scale is not the most appropriate tool for assessing respiratory impairment in myasthenia gravis
On 26/05/2026
Danish and French clinicians investigated the diagnostic and predictive value of the Myasthenia Gravis Activities of Daily Living (MG-ADL) scale for respiratory function in patients…
Research
A new case of adult myopathy associated with the ACTA1 gene
On 21/05/2026
French, Romanian and Russian researchers, including experts from the Institute of Myology, report the clinical, histological and genetic findings of an adult diagnosed with muscular…
Research
Autism spectrum disorders in children with SMA type 1 are not that rare
On 20/05/2026
Brazilian clinicians sought to determine the prevalence of autism spectrum disorders (ASD) among children with the most severe form of SMA type 1 who had…
Research
Significant variability in autoantibody tests
On 19/05/2026
Autoantibody testing is a key step in the diagnosis of many autoimmune diseases, including myositis. Against this backdrop, an international consortium of laboratories responsible for…
Events
Open Day for the general public at the Institute on Sat. 6 June
On 18/05/2026
Come and build up your knowledge! To mark the 4th edition of Muscle Week, the Institute of Myology is opening its doors on Saturday 6…
Research
Researchers from the institute’s NMR laboratory attending the ISMRM 2026 annual conference
On 18/05/2026
. Four experts from the NMR Imaging and Spectroscopy Laboratory will present the team’s work at the annual ISMRM (International Society for Magnetic Resonance in…
Events
ERN EURO-NMD webinar, 21 May: Prof. Marina Grandis (Italy)
On 15/05/2026
Episode 5 – Clinical Cases Requiring Nerve Biopsy (in EURO-NMD Neuropathology Webinar Series) Thursday 21 May 2026 – 16:00-17:00 Paris time Speaker: Prof. Marina Grandis (IRCCS…
Patient care
A new national protocol for the diagnosis and management of calpainopathies
On 15/05/2026
New guidelines for the diagnosis and management of calpainopathies (LGMD R1 and LGMD D4) have recently been published with a view to optimising clinical practice…
Events
M&Ms – Muscle Monday Seminar – 18 May – Dr Maartje Huijbers (The Netherlands)
On 13/05/2026
Pathogenic Mechanisms in Myasthenia Gravis With a Special Focus on MuSK MG: From Molecular Insight to Clinical Implications 18 May 2026 from noon to 1pm…
Research
A new pathogenic mechanism identified in oculo-pharyngo-distal myopathy
On 13/05/2026
Oculo-pharyngo-distal myopathy, with or without leukoencephalopathy, is caused in particular by the repetition of the GGC triplet in regions of DNA previously considered non-coding within…
Teaching
Promoting the dissemination of knowledge about muscles and muscle diseases and raising the awareness of myology
On 12/05/2026
With just one month to go until the 2026 session of the AcadeMYO Summer School, we take a look back at the educational activities in…
Patient care
Bioequivalence between Spinraza and its generic version, GNR-100, has been demonstrated in SMA
On 12/05/2026
GNR-100 could be the first generic version of Spinraza for SMN1-related proximal spinal muscular atrophy. A Russian study has demonstrated bioequivalence between the two products,…
Research
Sexual dysfunction remains understudied in neuromuscular disorders
On 11/05/2026
A team from the Institute of Myology conducted a literature review to assess the current state of knowledge regarding sexual dysfunction in neuromuscular diseases. The…
Research
Two easy-to-use tools for assessing bulbar function in SMA
On 11/05/2026
Canadian researchers used two tools designed to assess bulbar function in adults with SMN1-related proximal spinal muscular atrophy (SMA): 15 adults with SMA took part…