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2446 news items
Organisation
Signing of a partnership with the University Hospital and the University of Orléans to enhance research, clinical care and teaching in the field of myology
On 07/05/2026
Laurence Tiennot-Herment, President of the Myology Institute Association, Sébastien Vial, Director General of Orléans University Hospital, and Sébastien Ringuedé, Vice-President in charge of the Training…
Research
Ten years of diagnosing congenital muscular dystrophies and congenital myopathies in the UK
On 04/05/2026
The team at Great Ormond Street Hospital in London compiled clinical and molecular data from patients suspected of having congenital myopathy or congenital muscular dystrophy…
Events
ERN EURO-NMD webinar, 7 May : Prof. Mathilde Duchesne (France)
On 30/04/2026
Episode 4 – Infectious and Neoplastic Neuropathies (in EURO-NMD Neuropathology Webinar Series) Thursday 7 May 2026 – 16:00-17:00 Paris time Speaker: Prof. Mathilde Duchesne (CHU Limoges,…
Research
Late-onset facio-scapulo-humeral muscular dystrophy constitutes a distinct group
On 30/04/2026
An international consortium of experts on facioscapulohumeral muscular dystrophy (FSHD) has compiled observations from patients diagnosed at a relatively advanced age: using clinical and biological…
Research
Gaining a better understanding of the cause of two deaths linked to dilandistrogene moxeparvovec in order to better prevent them
On 29/04/2026
US experts in gene therapy for Duchenne muscular dystrophy (DMD) have investigated the causes of two deaths that occurred in 2025 and were attributed to…
Research
Rapamycin: an adjunctive treatment for post-gene therapy hepatotoxicity with AAV?
On 28/04/2026
American specialists in gene therapy using adeno-associated viruses (AAV) have investigated the serious cases of liver toxicity that occurred during gene therapy with microdystrophin (delandistrogene…
Events
The programme for the 2026 Muscle Conference is now available online
On 27/04/2026
Muscles lie at the heart of all the major challenges facing our modern societies: the prevention of common, serious and disabling conditions; the fight against…
Research
Study on a very rare form of core myopathy
On 27/04/2026
A study conducted in the Île-de-France region, involving researchers and clinicians from the Institute, describes the case of a patient who was diagnosed with congenital…
Research
The effect of nusinersen on taurine metabolism in SMA
On 24/04/2026
Italian researchers have been investigating taurine, a naturally occurring amino acid whose metabolism appears to be affected in proximal spinal muscular atrophy (SMA): they first…
Events
2nd Muscle Conference: ‘Muscle throughout life’ – Tuesday 2 June
On 22/04/2026
Muscle is now recognized as an essential organ for health at every stage of life, from before birth and into old age. It lies at the heart of major challenges facing modern societies: preventing common, serious…
Research
Is there an increased risk of cancer in autoimmune myasthenia gravis?
On 22/04/2026
Israeli researchers have investigated the risk of developing cancers other than thymoma in patients with autoimmune myasthenia gravis: data on 1,558 adults with myasthenia gravis…
Research
An in-depth and informative analysis of two false-positive cases in neonatal screening for SMA
On 21/04/2026
German and Australian researchers report the case of two newborns who tested positive at birth for SMA: during the initial routine analysis, a homozygous deletion…
Research
A questionnaire to assess the impact of non-dystrophic myotonias
On 21/04/2026
A French consortium of experts, coordinated by the Nice Neuromuscular Reference Centre, has developed a questionnaire called Active-NMD: this new tool is designed for patients…
Events
Ticket sales opened for the ‘Match of Heroes’ on May 31
On 20/04/2026
Paul de Saint-Sernin, Eden Hazard, Paul Mirabel, Dominique Rocheteau, Javier Pastore, Robert Pirès, Artus, Stéphane Ruffier… all coming together for an exceptional “Match of Heroes”…
Research
Rare forms of transition between dermatomyositis and ankylosing spondylitis
On 20/04/2026
American clinicians investigated a number of cases of juvenile dermatomyositis (JDM) in which symptoms and signs consistent with one of the three forms (axial, peripheral…
Research
Certain autoimmune diseases, including myositis, are caused by the internalisation of autoantibodies
On 17/04/2026
Researchers from Strasbourg, as part of an international consortium, report the results of large-scale transcriptomic analyses conducted in the context of autoimmune muscle diseases: using…
Organisation
The Association Institut de Myologie and the Foch-IMM Group join forces to promote myology and develop clinical research and muscle assessment
On 17/04/2026
The Association Institut de Myologie and the Foch-IMM Group (Foch Hospital and Institut Montsouris) have announced that they have entered into a strategic partnership aimed at promoting myology…
Research
Clinical stability in real-world settings following a switch to new enzyme therapies in Pompe disease
On 15/04/2026
Although phase III trials (the COMET and PROPEL trials) have demonstrated the efficacy of next-generation enzyme therapies – avalglucosidase alfa (Nexviadyme®) and cipaglucosidase alfa (Pombiliti®)…
Events
The 2026 Conference and Muscle Week
On 13/04/2026
Muscle Week 2026 returns from 1 to 7 June. The aim is to continue raising public awareness of the importance of maintaining healthy muscles. To…
Events
ERN EURO-NMD webinar, 16 Apr.: Prof. Joachim Weis (Germany)
On 10/04/2026
Episode 3 – Nerve Biopsy in Clinical Practice (in EURO-NMD Neuropathology Webinar Series) Thursday 16 April 2026 – 16:00-17:00 Paris time Speaker: Prof. Joachim Weis (Director,…