Events

The thirty hours of the 2024 Telethon came to a close with a total of 79,801,520 euros raised. A fantastic result for an event held on an unusual date! The 2024 Telethon will be remembered as a major breakthrough in the fight against Duchenne muscular dystrophy, the emblematic disease that led to the creation of … [Read more]

92,905,533 was the final amount raised by the Telethon held on 8 and 9 December 2023. This exceptional result bears witness to the unfailing mobilisation of millions of donors, volunteers and partners throughout France and abroad. It is also the result of the commitment of our ambassador, Vianney, as well as the artists, presenters and … [Read more]

The 16th Euro-Latin American Summer School in Myology, EVELAM 2023, took place in a hybrid format from 29 November to 2 December 2023 in Colonia de Sacramento, Uruguay. It brought together more than 200 participants from 10 different Latin American countries. The scientific programme ranged from fundamental myology to the most recent advances in the … [Read more]

Myology 2024 in Paris, join us now ! Secure your spot at a special rate, network with experts and explore the latest advancements in the field of myology. Embrace this opportunity to expand your knowledge and connect with peers in one of the world’s most captivating cities. Don’t miss out – Register now and set … [Read more]

After Matt Pokora, Soprano and Kev Adams, it’s singer and composer Vianney’s turn to join forces with researchers, families and thousands of volunteers across France in the fight against rare diseases on 8 and 9 December 2023. The ambassador families for the next Telethon reflect the victories won thanks to you, against diseases that were once … [Read more]

The Neuropathies Rehabilitation Summer School will take place from September 18-21, 2023 in Roma, Italy. Held under the auspices of ERN EURO-NMD, this summer school aims to disseminate knowledge on current and future modalities of rehabilitation in rare and complex peripheral neuropathies and assessment of evidences, it is designed for physiotherapists, occupational therapists, clinicians with … [Read more]

Myology 2024, the 8th International Myology Congress, will be held in Paris from 22 to 25 April 2024. This 8th edition of the international congress dedicated to neuromuscular science is expected to bring together around 1,000 delegates from all over the world. With the Olympic Games just a few weeks away, we will have more … [Read more]