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The operation “1000 researchers in schools in France and abroad” bringing together researchers, middle and high school students, for a moment of sharing intended to discover the reality of research, is underway and will end on the 3rd December, the…
Muscle & Statins Thursday November 18th, 2021 – 4pm (Paris Time) Pr Dr Kristl Claeys, MD, PhD (University Hospitals Leuven, Belgium) Inscription : Organised by EURO-NMD in collaboration with ERN-RND and EAN
Rare Diseases’ therapies integration in diagnostic support tools through the Treatabolome platform Thursday October 21st, 2021 – 4pm (Paris Time) Gisele Bonne (Sorbonne University – INSERM – Institut of Myology, Paris, France) Carles Hernandez-Ferrer (CNAG -CRG, Barcelona, Spain) Katja Lohmann…
The operation, organized each year by the Ministry in charge of Education, Research and Innovation, aims to allow everyone to discover the world of science and meet the women and men who do science today. It will take place virtually…
The 26th International Congress of the World Muscle Society, which brings together muscle experts from around the world, was held September 20-24, providing an opportunity to highlight the work of many of the institute’s researchers and clinicians. Save the…
Interview with Norma B. Romero and Stéphane Vassilopoulos Since July 2021, researchers, doctors and engineers/ technicians from the Institute of Myology have been learning to use the different functions of the new state-of-the-art transmission electron microscope that the Institute has…
Webinar organised by EURO-NMD in collaboration with ERN-RND and EAN. Thursday September 30, 2021 – 16:00-17:00 (Paris time) NGS results and CNV detection in Czech patients with neuromuscular disease Jana Zídková (University Hospital Brno, Centre of Molecular…
From September 20 to 24, the 26th International Congress of the World Muscle Society (WMS), bringing together muscle experts from around the world, will highlight the work of numerous researchers and clinicians from the Institute of Myology. From basic research,…
Today, September 15, 2021, marks the first International Myotonic Dystrophies Awareness Day. Objective: to highlight these rare diseases to improve diagnosis, care and support, but also to push forward research. Euro-DyMA, a federation of ten European patient associations, of which…
Interview with Alfredo Lopez Kolkovsky, researcher from the NMR Imaging and Spectroscopy Laboratory at the Neuromuscular Investigation Centre of the Institute of Myology, jointly managed by H. Reyngoudt and B. Marty. He is the first author of an article* published in…
On October 21, at 8:30 p.m., the Casino de Paris will host an exceptional show for the benefit of the Institute of Myology, a research and care center of excellence created by the AFM-Telethon and dedicated to Muscle science and…
The creation of an open platform drawing up an inventory of all existing treatments for rare genetic diseases, including neuromuscular diseases, is one of the objectives of the European Solve-RD project, which fights diagnostic delay. This platform, better known as…
Prof. Fabrice Chrétien joined the teams of the Institute of Myology on June 15 as Director of the Center for Neuromuscular Exploration and Assessment which is currently composed by a staff of thirty persons. It encompasses three laboratories and a tissue…
AcadeMYO, the first fully virtual release of the institute’s Myology Summer School, took place July 5-9. This 2021 edition was a great success. In fact, 115 people attended the courses – nearly twice as many students as during the last…
I-Motion is recruiting patients with Duchenne muscular dystrophy to participate in two pharmacological trials designed to test an antifibrotic monoclonal antibody, pamrevlumab (or FG-3019), developed by FibroGen. The objective of these phase III trials is to assess the tolerance, safety…
The “Biotherapies for motor neuron disorders group” (BOND) is looking for a postdoctoral fellow to lead a preclinical research project on the evaluation of the therapeutic effects of a gene therapy strategy for the treatment of Amyotrophic Lateral Sclerosis (ALS)…
The “Biotherapies for motor neuron disorders group” (BOND) is looking for a postdoctoral fellow to lead a research project on the understanding of novel molecular mechanisms involved in the Spinal Muscular Atrophy (SMA) pathogenesis. The project includes in vitro studies…
Webinar organised by EURO-NMD in collaboration with ERN-RND and EAN. Thursday June 10, 2021 – 6:00-17:00 (Paris time) Addressing disease heterogeneity in myotonic dystrophy. Towards personalized intervention. Alain Geille (President of Euro-DyMA) Prof. Baziel van Engelen (Head…
France Pietri-Rouxel, leader of the Gene Therapy for DMD & Skeletal Muscle Pathophysiology Group at the Myology Centre for Research of the institute was the guest of Sidonie Bonnec in the radio programme “Minute Papillon” on the French radio station…
The Institute’s Summer School of Myology becomes AcadeMYO this year. Entirely virtual, it will take place from July 5th to 9th, in partnership with the European Reference Network EURO-NMD. The new digital format includes a significant portion of pre-available video…