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Several members of the NMR Laboratory presented the team’s work at the annual ISMRM (International Society for Magnetic Resonance in Medicine) conference, held in Toronto from June 3 to 8, 2023. Communications Eléonore Vermeulen : Quantification of muscle fat fraction…
In 1998, the Institute of Myology, an international center of expertise on muscle, created the Summer School of Myology with the aim of disseminating knowledge and advances in research on neuromuscular diseases, 400 different forms of which have been identified…
As part of Muscle Week, the Institute of Myology invites you to dive into the heart of the “Muscle”. On Saturday 3 June, between 10am and 5pm, we invite you to a special “Muscle” day at the heart of our…
The Institute welcomed its first class of medical students for an introduction to research in the field of myology in April 2023. This week of training, which is part of the medical curriculum at Sorbonne University, was organised by Guillaume…
Myology 2024, the 8th International Myology Congress, will be held in Paris from 22 to 25 April 2024. This 8th edition of the international congress dedicated to neuromuscular science is expected to bring together around 1,000 delegates from all over…
Childhood ALS and the Missing 6th Sense: Novel SPT and PIEZO2 associated Syndromes Wednesday 24 May – 11:00-12:00 Carsten G. Bönnemann, MD (NINDS, NIH, USA) Institute of Myology amphitheatre Babinski building 47/83 Boulevard Vincent Auriol 75013 Paris métro :…
Eline Lemerle completed her thesis* under the supervision of Stéphane Vassilopoulos, in Marc Bitoun’s team (Muscle Organization & Therapy of Dominant Centronuclear Myopathy) at the Institute’s Myology Centre for Research. Her work on the formation of T-tubules in the muscle…
The Reference Centre for Neuromuscular Diseases of Eastern Paris is organising its 18th meeting on the theme: Medically Assisted Reproduction and Parenthood – Clinical, Legal and Cultural Aspects. The meeting will take place on Friday 23 June 2023 – 9:00…
Inflammatory Myopathies 6th April 2023 – 4pmParis Time Prof. Werner Stenzel (Charité – Universitätsmedizin Berlin, Germany) Registration: Organised by EURO-NMD in collaboration with ERN-RND
The 6th conference of the French Society of Magnetic Resonance in Biology and Medicine (SFRMBM) was held in Paris from 27 to 29 March 2023. Its objective: to present the latest methodological advances and innovative applications in magnetic resonance imaging…
Fiorella Grandi started a postdoctoral fellowship in October 2022 in the Epigenetics and biotherapies for motor neuron disorders (ALS & SMA) group led by Piera Smeriglio. She is a laureate of the MSCA Postdoctoral Fellowships 2022 call (Marie Skłodowska-Curie Actions…
ERN EURO-NMD European Reference Networks (ERNs) are networks involving centers of expertise and health care providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialized treatment, as well as a concentration of knowledge…
Organized by Euro-NMD and TREAT-NMD networks, this summer school offers lectures concerning the management of acquired and genetic neuromuscular diseases, the different steps of drug development, assessment tools, communication and the role of the patients in each of these steps.…
Muscle hyperexcitability and cramps 9th March 2023 – 4pm Paris time Dr. Federica Montagnese (Friedrich-Baur Institute, Department of Neurology, Ludwig-Maximilian University Munich, Germany) Registration : Organised by EURO-NMD in collaboration with ERN-RND
To mark International Rare Disease Day on 28 February, AFM-Telethon is advocating for the creation of a public intervention and innovation fund in France for the treatment of ultra-rare diseases with no prospect of commercial profitability. The aim: to guarantee…
The Institute of Myology and AFM-Telethon organised a press conference on 7 February to position muscle as a public health issue by announcing the project to create a Foundation of Myology and two dedicated events to raise awareness of this…
Because muscles are a major public health issue, AFM-Telethon and the Institute of Myology, an international center of expertise on muscles and their diseases, are carrying out a project for a Myology Foundation. In addition, to raise awareness on myology…
The 25th Summer School of Myology will take place at the Institute of Myology in Paris from June 12 to 16, 2023 in two ways: face-to-face, for 40 to 50 people, and online, on the same dates, for remote participants.…
Cognitive impairments in neuromuscular disorders Thursday, 26 January 2023 – 3pm-4pm Stefan Winblad (University of Gothenburg, Sweden) Amphitheatre C (Ground Floor) 91 Boulevard de l’Hôpital 75013 Paris Hosts : Nathalie Angeard (AIM) and Mario Gomes-Pereira (CRM)
Proximal Weakness 26 January 2023 – 16:00 Paris time Pr Kristl Claeys (University Hospitals Leuven, Belgium) Inscription : Organised by EURO-NMD in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.