The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience

Lalout N, Wilkinson MD, Wandrei D, Tassoni A, Atalaia A, Prieto M, Camara A, Quemada E, Franken M, Jonker AH, Paliouras G, Siminiuc S, Carta C, Dos Santos Vieira B, Roos M, Kaliyaperumal R, Evangelista T, ‘t Hoen PAC, Vroom E

Journal of Neuromuscular Diseases