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1655 news items
Events
ERN EURO-NMD webinar, 22 May: Prof. Tracey Willis (UK)
On 16/05/2025
FSHD webinar series – Episode 3: “Pediatric FSHD” Thursday 22 May 2025 – 16:00 – 17:00 Paris time Prof. Tracey Willis (Robert Jones and Agnes…
Research
Researchers from the Institute at the 15th MGFA International Conference
On 15/05/2025
Institute researchers at the 15th International MGFA ConferenceInstitute experts presented their work at the 15th International MGFA Conference on myasthenia gravis and associated disorders, held…
Research
Results of a European survey on the management of bone problems in neuromuscular diseases
On 14/05/2025
The partial or total immobility caused by many neuromuscular diseases, whether or not associated with the deleterious effect of corticosteroid therapy, is often the cause…
Research
A new murine model of myasthenia gravis that is more effective and better suited to animal welfare
On 12/05/2025
The Myasthenia gravis, etiology, pathophysiology & therapeutical approaches team, led by Rozen Le Panse at the Institute of Myology’s Myology Research Centre, has developed a…
Research
Identification of effective, non-invasive MRI markers in LGMD R9
On 12/05/2025
French researchers from the Institute of Myology, Genethon and Atamyo, in collaboration with Dutch researchers, have studied several quantitative MRI parameters in order to identify…
Research
The benefit of reusing data from placebo groups in inclusion myositis
On 12/05/2025
American researchers associated with the Institute of Myology Research Centre have compiled and re-analysed the data accumulated in the placebo arms of several clinical trials…
Events
On Saturday 7th of June, the Institute of Myology is holding an Open Day
On 09/05/2025
To mark the 3rd edition of the Muscle Week, the Institute is holding an Open Day on Saturday 7th of June, from 10am to 5pm. Visitors…
Events
The RMN lab offers a PhD opportunity on the development of real-time quantitative MRI for muscles involved in respiration, swallowing and eye movements
On 09/05/2025
PhD opportunity at the Nuclear Magnetic Resonance Laboratory at Institute of Myology. Development of real-time quantitative MRI for muscles involved in respiration, swallowing and eye…
Events
The RMN lab offers a PhD opportunity on Low Field MR-Fingerprinting for respiratory assessment
On 09/05/2025
PhD opportunity at the Nuclear Magnetic Resonance Laboratory at Institute of Myology. Low Field MR-Fingerprinting for respiratory assessment Keywords: Low-field MRI, sequence development, undersampled reconstruction…
Research
A revision of the classification of congenital myopathies in the light of recent discoveries
On 09/05/2025
The team at the Créteil Neuromuscular Disease Reference Centre takes stock of congenital myopathies in the light of the recent exponential increase in knowledge in…
Events
M&M’s – Muscle Monday Seminar – 12 May – Remi Mounier (France)
On 07/05/2025
Metabolic regulations of adult muscle stem cell fate Monday 12 May 2025 – 12h00-13h00 Remi Mounier (NeuroMyoGène, Lyon, France) More information on the presentation and…
Research
Immune-mediated necrotising myopathy in children, a Chinese picture
On 07/05/2025
A study conducted by a hospital in Beijing (China) has refined our knowledge of the phenotype of immune-mediated necrotising myopathy in paediatrics: 55 of the…
Events
ERN EURO-NMD webinar, 15 May: Dr. Teresinha Evangelista (France)
On 07/05/2025
FSHD webinar series – Episode 2: “International Clinical Care Guidelines” Thursday 15 May 2025 – 16:00 – 17:00 Paris time Dr. Teresinha Evangelista (Institute of…
Events
ERN EURO-NMD webinar, 8 May: Prof. Emiliano Giardina (Italy)
On 05/05/2025
FSHD webinar series – Episode 1: “Genetic Diagnosis” Thursday 8 May 2025 – 16:00 – 17:00 Paris time Prof. Emiliano Giardina (University of Rome Tor…
Research
Long-term data on the evolution of patients with congenital myopathy
On 05/05/2025
The Centre de référence des maladies neuromusculaires of the Institute of Myology conducted a single-centre observational study of 142 adult patients with congenital myopathy followed…
Research
Positive results with gene therapy in a monkey model of DMD
On 02/05/2025
A Chinese team has developed a rhesus monkey model of Duchenne muscular dystrophy, enabling it to evaluate a new gene therapy, with encouraging results. The…
Research
Overexpressing utrophin in DMD: a new therapeutic approach in the spotlight
On 30/04/2025
Chinese researchers have revived a therapeutic technique designed to over-express utrophin, an endogenous protein very similar to dystrophin: they used a genome-editing approach in several…
Research
Data from a cohort of 219 patients with distal myopathy provide further details on the characteristics of these diseases
On 30/04/2025
Spanish doctors have published the demographic, clinical, genetic and physiological data from the largest cohort of patients with distal myopathy. With 219 patients included, the…
Research
A significant advance in DMD cell therapy
On 29/04/2025
British researchers have succeeded in significantly improving the grafting of myogenic progenitor cells (MPC) into the muscle fibre of mouse models of Duchenne muscular dystrophy:…
Research
Towards a European register of autoimmune myasthenia gravis cases
On 29/04/2025
At a time when innovative therapies are being developed for refractory forms of autoimmune myasthenia gravis, the idea of setting up a European register is…