Institute events

How to evaluate patients with Myasthenia Gravis  Thursday 6 November 2025 – 16:00 – 17:00 Paris time  Dr. Lorenzo Maggi (Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy) & Lutgarde Allard (President of the European Myasthenia Gravis Association (EuMGA & Patient expert) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

Advanced organoids for studying the human neuromuscular system in vitro Monday 10 November – from 12 to 1pm (Paris time) Dr Anna URCIUOLO (Italy) invited by Dr Sestina Falcone   More information on the presentation and the speaker On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   M&M’s seminar organised by the … [Read more]

Interview with Dr Marina Colella, Deputy Director and Head of Medical Staff at I-Motion, and Saadane Kirouani, Deputy Director and Head of Non-Medical Staff. What is the mission of the I-Motion platforms? S.K. The Institute of Myology wanted to set up facilities capable of testing treatments under the best conditions by creating two integrated platforms … [Read more]

Nutrition in Myopathies, Including Supplements Thursday 30 October 2025 – 16:00 – 17:00 Paris time  Marianne Nordstrøm, PhD (Frambu Resource Centre for Rare Disorders and Oslo University Hospital, Norway) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

Pompe Disease – Current Treatment and Future Prospects Thursday 23 October 2025 – 16:00 – 17:00 Paris time Prof. Benedikt Schoser (Dept. of Neurology, Ludwig-Maximilians-University of Munich, Germany) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

Two young researchers, a PhD student and a postdoctoral fellow, from the Muscle organization & therapy of dominant centronuclear myopathy team co-led by Marc Bitoun and Stéphane Vassilopoulos at the Institute’s Center of Research in Myology, presented their work at two international myology conferences. At the 30th International Congress of the World Muscle Society (WMS), … [Read more]

The Institute of Myology, an international centre of expertise, coordinates diagnostic, assessment, care, fundamental and applied research, clinical research and teaching activities centred around the patient. Our priority: Innovate to cure. Our ambition: To find treatments for neuromuscular disorders. Our mission: To deepen our understanding of muscle dysfunction in order to develop therapeutic approaches to … [Read more]

On Monday 6 and Tuesday 7 October, we had the pleasure of welcoming 80 visitors at the Institute of Myology for “Fête de la Science” (Science Festival). The programme included: a presentation of the Institute, its missions, activities and expertises, a tour of the Neuromuscular Physiology and Evaluation Laboratory with demonstrations of the evaluation tests … [Read more]

Management of HyperCKemia Thursday 16 October 2025 – 16:00 – 17:00 Paris time Prof. Antonio Toscano (University of Messina, Italy) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.  

The 11th Limb Girdle Muscular Dystrophy Awareness Day takes place on 30 September. Organised by the LGMD Awareness Foundation, the aim of this day is to draw attention each year to this group of rare neuromuscular diseases that have an impact on the lives of many people, children and adults alike, in every region of … [Read more]