Institute events

Ex vivo editing of human hematopoietic stem cells for erythroid expression of therapeutic proteins Monday 25 January 2021 – 12:00-13:00 Mario Amendola, PhD (Therapeutic genome editing’ group,UMRS951, Evry, France) Hosted by : Maria-Grazia Biferi   On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr    > Further details on the seminar of Mario … [Read more]

The Institute of Myology teams have just published, in the Journal of Cachexia, Sarcopenia and Muscle, the results of a study demonstrating the significant potential of a non-invasive method to measure muscle volume. Interview with Damien Bachasson and Jean-Yves Hogrel, of the Institute of Myology’s Neuromuscular Physiology and Evaluation Laboratory. What is the overall context of … [Read more]

Role of skeletal muscle mesenchymal progenitors in bone regeneration Monday 18th January 2021 – 12:00-13:00 Céline Colnot, PhD. (Institut Henri Mondor de Recherche Biomédicale, Créteil, France) Hosted by Capucine Trollet On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   > Further details on the seminar of Céline Colnot

Dear patients and families, Dear donors, Dear partners,   We wish you a very happy New Year and excellent health. We hope this New Year brings you the energy for renewal needed to accomplish the projects close to your heart, and we hope these projects are numerous and inspiring!   We warmly thank all the … [Read more]

Located in Paris at the heart of the largest European hospital, Pitié-Salpêtrière, the Institute of Myology was created in 1996 by AFM-Telethon, a patient’s organization. Its goal: Promote Myology and have it accepted as a standalone clinical and scientific discipline. The Institute of Myology coordinates around the patient, medical care, basic research, applied research, clinical … [Read more]

Webinar organised by EURO-NMD in collaboration with ERN-RND and EAN Thursday 21st January 2021 – 4:00 am (Paris time)       Sleepiness, fatigue and apathy in DM1 patients       Dr Benjamin Gallais (Researcher from Cégep de Jonquière and lecturer at the Faculty of Medecine and Health Sciences, Sherbrooke University, Quebec, Canada)   … [Read more]

The role of SMN outside the CNS: Implications for clinical care of Spinal Muscular Atrophy Monday 11th January 2021 – 1 pm-2 pm Rashmi Kothari, PhD. (Ottawa Hospital Research Institute, University of Ottawa, Canada) Hosted by Maria-Grazia Biferi On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   > Further details on the … [Read more]

At the end of the television broadcast, the counter of the 2020 Telethon shows 58 290 120 euros. Despite the health crisis, which led to the cancellation of a very large number of events in towns and villages, the French people responded positively to this extraordinary Telethon: the one presenting the greatest victories of its … [Read more]

Webinar organised by EURO-NMD in collaboration with ERN-RND and EAN Thursday 10th December 2020 – 4:00 am (Paris time)   Challenges in the diagnosis and management of patients with myasthenia gravis   Isabel Leite (Senior Researcher and Honorary Clinical Neurologist from the Nuffield Dept of Clinical Neurosciences Oxford University, UK)   Inscription : https://aim.zoom.us/webinar/register/WN_CUlyQGJCQL6nU6nBr4ikQA

The teams of the Institute of Myology fully committed and organized despite the crisis   Regarding this second period in the health crisis we are going through and strengthened by the measures provided in the first period, our teams have been able to adapt and know how to work in an epidemic situation. Some of our … [Read more]