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Gala Hope – Dance for Research

On 6 February, the Casino de Paris hosted the second Hope Gala. An exceptional evening that brought together the great names of French and international dance, in aid of research at the Institut de Myologie. Proceeds from the Gala will be donated to the Institut de Myologie Association. Initiated by Laura Arend, dancer and choreographer, … [Read more]

Myotubular muscular dystrophy: trial results show efficacy on respiratory and motor function, but challenges remain

Yesterday, The Lancet Neurology published the clinical results of a gene therapy trial conducted by Astellas Gene Therapies, using a drug candidate developed at Genethon, in 24 children suffering from myotubular myopathy, a very severe muscle disease. This international trial, which is taking place in 6 investigating centres around the world, including I-Motion, the Institut … [Read more]

Summer School of Myology: For 25 years, 1,000 medical doctors from all over the world have been training in muscle science and medicine

In 1998, the Institute of Myology, an international center of expertise on muscle, created the Summer School of Myology with the aim of disseminating knowledge and advances in research on neuromuscular diseases, 400 different forms of which have been identified to date, to healthcare professionals. Coordinated by doctors J.A. Urtizberea and Norma B. Romero, this … [Read more]

Muscle, a major public health issue

Because muscles are a major public health issue, AFM-Telethon and the Institute of Myology, an international center of expertise on muscles and their diseases, are carrying out a project for a Myology Foundation. In addition, to raise awareness on myology among the public, they are launching two events dedicated to this public health issue in … [Read more]

Myology 2022: Institute of Myology experts will highlight their last scientific results

During four days, from 12 to 15th of September, researchers and clinicians of the Institute of Myology will attend the seventh International Congress of Myology, organized by AFM-Téléthon. This renewed international congress brings together around 800 experts in the field of Myology and neuromuscular diseases from all over the world (35 countries). More than 70 … [Read more]

France revives positive European Momentum against Rare Diseases

It is a positive commitment, but France must set an example by perpetuating and amplifying a truly ambitious national policy. February 28 marked the 15th International Rare Diseases Day. On this occasion, thousands of initiatives – national, European and international – took place in more than 100 countries to bring visibility to the immense needs … [Read more]

A new approach to gene therapy for Steinert’s disease

The Denis Furling* team (Paris, France), in collaboration with the Nicolas Sergeant** team (Lille, France), has developed and tested a new approach to gene therapy, a so-called “decoy” approach, for Steinert’s disease or myotonic dystrophy type 1 (DM1). The strategy is based on the expression of modified proteins that will bind to the pathological expansions … [Read more]

Lower limb exoskeletons: 2 clinical studies starting at the Institute

The rare neuromuscular diseases are characterised, in particular, by a progressive loss of muscle strength. As a result, getting up, sitting down or going up stairs can quickly become difficult. This is why the Institute of Myology, a centre of expertise in the science and medicine of the muscle, has just launched two studies, whose … [Read more]

Hope, an exceptional dance gala for the benefit of research excellence

On October 21, at 8:30 p.m., the Casino de Paris will host an exceptional show for the benefit of the Institute of Myology, a research and care center of excellence created by the AFM-Telethon and dedicated to Muscle science and medicine.    At the initiative of Laura Arend, dancer and choreographer, and Charlotte Ranson, dancer … [Read more]

Dr Emmanuelle Lagrue, MD-PhD, pediatric neurologist, joins Généthon and I-Motion

Dr Emmanuelle Lagrue, MD-PhD, pediatric neurologist, simultaneously joins Généthon, the AFM-Telethon laboratory dedicated to gene therapy, as Senior Medical Manager, and I-Motion, the pediatric clinical trials platform of the Institute of Myology, as Deputy Director. Holder of a university degree in pediatric neurology and a doctorate in Sciences, Dr Emmanuelle Lagrue multiplies expertises. After her pediatric … [Read more]