Our press releases
RSS feedMYOLOGY 2024: focus on the institute speakers
The 8th International Congress of Myology will be held in Paris from 22 to 25 April 2024. Here are the eight themes that experts from the Institute of Myology will be presenting to the international community over the next few days: Tuesday 23 April – Muscle Fibrosis / Ageing Session 11h30 : Capucine Trollet … [Read more]
43 French personalities call for a national “Muscle Plan” as a legacy of the Paris Olympic and Paralympic Games
Over forty French personalities from a broad range of backgrounds are calling for the launch of a national, cross-disciplinary “Muscle Plan” to give muscle science and medicine the ressources to transform the lives of French people. This appeal follows on from the first Muscle Conferences, organized on June 1 at the Conseil économique, social et … [Read more]
Gala Hope – Dance for Research
On 6 February, the Casino de Paris hosted the second Hope Gala. An exceptional evening that brought together the great names of French and international dance, in aid of research at the Institut de Myologie. Proceeds from the Gala will be donated to the Institut de Myologie Association. Initiated by Laura Arend, dancer and choreographer, … [Read more]
Myotubular muscular dystrophy: trial results show efficacy on respiratory and motor function, but challenges remain
Yesterday, The Lancet Neurology published the clinical results of a gene therapy trial conducted by Astellas Gene Therapies, using a drug candidate developed at Genethon, in 24 children suffering from myotubular myopathy, a very severe muscle disease. This international trial, which is taking place in 6 investigating centres around the world, including I-Motion, the Institut … [Read more]
Summer School of Myology: For 25 years, 1,000 medical doctors from all over the world have been training in muscle science and medicine
In 1998, the Institute of Myology, an international center of expertise on muscle, created the Summer School of Myology with the aim of disseminating knowledge and advances in research on neuromuscular diseases, 400 different forms of which have been identified to date, to healthcare professionals. Coordinated by doctors J.A. Urtizberea and Norma B. Romero, this … [Read more]
Muscle, a major public health issue
Because muscles are a major public health issue, AFM-Telethon and the Institute of Myology, an international center of expertise on muscles and their diseases, are carrying out a project for a Myology Foundation. In addition, to raise awareness on myology among the public, they are launching two events dedicated to this public health issue in … [Read more]
Myology 2022: Institute of Myology experts will highlight their last scientific results
During four days, from 12 to 15th of September, researchers and clinicians of the Institute of Myology will attend the seventh International Congress of Myology, organized by AFM-Téléthon. This renewed international congress brings together around 800 experts in the field of Myology and neuromuscular diseases from all over the world (35 countries). More than 70 … [Read more]
France revives positive European Momentum against Rare Diseases
It is a positive commitment, but France must set an example by perpetuating and amplifying a truly ambitious national policy. February 28 marked the 15th International Rare Diseases Day. On this occasion, thousands of initiatives – national, European and international – took place in more than 100 countries to bring visibility to the immense needs … [Read more]
A new approach to gene therapy for Steinert’s disease
The Denis Furling* team (Paris, France), in collaboration with the Nicolas Sergeant** team (Lille, France), has developed and tested a new approach to gene therapy, a so-called “decoy” approach, for Steinert’s disease or myotonic dystrophy type 1 (DM1). The strategy is based on the expression of modified proteins that will bind to the pathological expansions … [Read more]
Lower limb exoskeletons: 2 clinical studies starting at the Institute
The rare neuromuscular diseases are characterised, in particular, by a progressive loss of muscle strength. As a result, getting up, sitting down or going up stairs can quickly become difficult. This is why the Institute of Myology, a centre of expertise in the science and medicine of the muscle, has just launched two studies, whose … [Read more]
