Institute events

Palliative Care in Adult Patients with Neuromuscular and other Rare Neurological Disorders Tuesday 23 June 2026 – 16:00-17:00 Paris time Marianne de Visser (Amsterdam University Medical Center, The Netherlands) > + infos   Organized by EURO-NMD in collaboration with ERN-RND

Optimizing preparation for clinical trials in rare diseases through translational and interdisciplinary research: the NMD experience Monday 15 Juin 2026 from noon to 1pm (Paris time) Dr Cynthia Gagnon (Sherbrooke University, Québec, Canada) invited by Capucine Trollet More d’information on the speaker and the intervention   On prior registration for people outside the Institute of Myology: … [Read more]

Episode 8 – Skin Biopsy in Small Fiber Neuropathy (in EURO-NMD Neuropathology Webinar Series) Thursday 18 June 2026 – 16:00-17:00 Paris time Speaker: Prof. Grazia Devigili (Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy) Moderator: Dr. Teresinha Evangelista (Hôpital de la Pitié Salpêtrière – AP-HP, Institute of Myology, Paris, France) Diagnostic yield and clinical value of skin … [Read more]

On 17 and 18 June, the GenoTher biocluster is organising the GenoTher Summit 2026 – Accelerating the Future of Genetic Medicine in Paris. Bringing together leading experts from the fields of science, biotechnology, the pharmaceutical industry, clinical networks and regulation, this symposium offers an opportunity to discover the latest advances in genetic medicine, gene therapy … [Read more]

Episode 7 – Amyloid Neuropathies and Therapeutic Approaches (in EURO-NMD Neuropathology Webinar Series) Thursday 11 June 2026 – 16:00-17:00 Paris time Speaker: Prof. Andoni Echaniz Laguna (Université Paris-Saclay- AP-HP, Bicêtre Hospital, France) Moderator: Dr. Clovis Adam (AP-HP, Bicêtre Hospital, France) Latest advances in therapeutic strategies for hereditary and acquired amyloid neuropathies > + infos   Organized by … [Read more]

2 June 2026 marks the 4th European Myasthenia Gravis Day. Created on the initiative of the All United for MG coalition, which brings together patient organisations and representatives from seven European countries (Belgium, France, Germany, Greece, Italy, Romania and Spain), this symbolic day serves to raise awareness of this neuromuscular autoimmune disease. Unpredictable and often … [Read more]

Episode 6 – Nerve Pathology in Neuropathy Models (in EURO-NMD Neuropathology Webinar Series) Thursday 4 June 2026 – 16:00-17:00 Paris time Speaker: Prof. Kleopa Kleopas (the Cyprus Institute of Neurology and Genetics (CING), Cyprus) Moderator: Prof. Edoardo Malfatti (AP-HP, Hôpital Henri Mondor, Créteil, France) Quantitative pathology and outcome measures in experimental models > + infos   Organized … [Read more]

  Nucleus-cytoskeleton coupling in development and disease Friday 19 June 2026 – 10h30 – Auditorium of the Institute of Myology Yin Loon Lee, PhD (Group leader at A*STAR Skin Reseach Labs in Singapore) Invited by Bruno Cadot, researcher in the Signaling pathways and striated muscles team, head of MyoImage   A few words about the … [Read more]

Come and build up your knowledge! To mark the 4th edition of Muscle Week, the Institute of Myology is opening its doors on Saturday 6 June, from 10.00 am to 5.00 pm. Come and meet our scientific experts, doctors and researchers to discover muscles in all their forms, understand how they work and the interactions … [Read more]

Episode 5 – Clinical Cases Requiring Nerve Biopsy (in EURO-NMD Neuropathology Webinar Series) Thursday 21 May 2026 – 16:00-17:00 Paris time Speaker: Prof. Marina Grandis (IRCCS Ospedale Policlinico San Martino – Genova, Italy) Moderators: Prof. Werner Stenzel & Prof. Hans-Hilmar Goebel (Charité – Universitätsmedizin Berlin, Germany) Instructive clinical cases where nerve biopsy is essential to reach a … [Read more]