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The Institute of Myology is recruiting a Bio-informatic engineer – Projet manager (M/F)

Located in Paris at the heart of the largest European hospital, Pitié-Salpêtrière, the Institute of Myology was created in 1996 by AFM-Telethon, a patient’s organization. Its goal: Promote Myology and have it accepted as a standalone clinical and scientific discipline. The Institute of Myology coordinates around the patient, medical care, basic research, applied research, clinical … [Read more]

ERN EURO-NMD webinar, 21st January: Benjamin Gallais (Canada)

Webinar organised by EURO-NMD in collaboration with ERN-RND and EAN Thursday 21st January 2021 – 4:00 am (Paris time)       Sleepiness, fatigue and apathy in DM1 patients       Dr Benjamin Gallais (Researcher from Cégep de Jonquière and lecturer at the Faculty of Medecine and Health Sciences, Sherbrooke University, Quebec, Canada)   … [Read more]

M&M’s – Muscle Monday Seminar – 11 Jan – Rashmi Kothari (Canada)

The role of SMN outside the CNS: Implications for clinical care of Spinal Muscular Atrophy Monday 11th January 2021 – 1 pm-2 pm Rashmi Kothari, PhD. (Ottawa Hospital Research Institute, University of Ottawa, Canada) Hosted by Maria-Grazia Biferi On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   > Further details on the … [Read more]

ERN EURO-NMD webinar, 10th December: Isabel Leite (UK)

Webinar organised by EURO-NMD in collaboration with ERN-RND and EAN Thursday 10th December 2020 – 4:00 am (Paris time)   Challenges in the diagnosis and management of patients with myasthenia gravis   Isabel Leite (Senior Researcher and Honorary Clinical Neurologist from the Nuffield Dept of Clinical Neurosciences Oxford University, UK)   Inscription : https://aim.zoom.us/webinar/register/WN_CUlyQGJCQL6nU6nBr4ikQA

Release of the 82nd newsletter from the Institute

The teams of the Institute of Myology fully committed and organized despite the crisis   Regarding this second period in the health crisis we are going through and strengthened by the measures provided in the first period, our teams have been able to adapt and know how to work in an epidemic situation. Some of our … [Read more]

M&M’s – Muscle Monday Seminar – 7 Dec – Prof. Elizabeth Chen (USA)

Mechanical Tension Drives Cell-Cell Fusion Monday 7 December 2020 – 4pm-5pm
 Pr Elizabeth Chen (University of Texas Southwestern Medical Center, USA) Hosted by Catherine Coirault et Bruno Cadot On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr > Further details on the seminar of Prof. Elizabeth Chen

Operation ‘1000 researchers at schools’ is ongoing

The operation ‘1000 researchers in schools in France and abroad’ intended to bring together researchers and middle school students to share a moment and discover the reality of research. Many establishments signed up for an intervention. About fifty researchers from the Institute of Myology took part in this operation in 65 establishments (middle and high … [Read more]

A researcher visiting schools – Interview with Nadine Dragin


Nadine Dragin is among the first scientific experts to be going out to meet high school students for the 2020 edition of Operation 1000 researchers at schools based in France and abroad. Despite the current health situation and the constraints that it imposes, she did not hesitate to go out and meet a few dozen … [Read more]

Innovation for the non-invasive assessment of the diaphragm – Interview with T. Poulard and D. Bachasson

Thomas Poulard* and Damien Bachasson** from the Neuromuscular Physiology and Evaluation Laboratory headed by Jean-Yves Hogrel, have just published, in the Journal of Physiology, the results of a study*** to develop an ultrafast ultrasound sequence making it possible to “film” diaphragm performance during cervical magnetic stimulation (CMS) of the phrenic nerves in healthy subjects. What are the … [Read more]

M&M’s – Muscle Monday Seminar – 25 Jan. – Mario Amendola, PhD (France)

Ex vivo editing of human hematopoietic stem cells for erythroid expression of therapeutic proteins Monday 25 January 2021 – 12:00-13:00 Mario Amendola, PhD (Therapeutic genome editing’ group,UMRS951, Evry, France) Hosted by : Maria-Grazia Biferi   Prior registration for people outside the institute: medecine-umrs974-myologie@sorbonne-universite.fr    > More about this seminar