Institute events

Myobank-AFM, the Research Tissue Bank of the Institute of Myology, is a non-profit service involved in the collection, preparation, storage and distribution of human tissue samples, primarily from people with neuromuscular or rare diseases but also healthy subjects. This center of biological resources is intended for the exclusive use of research and this, in respect … [Read more]

Adults I-Motion is a platform of excellence for clinical trials, serving research into treatments for neuromuscular diseases.  Adults I-Motion was created in July 2019 on the model of the Paediatric I-Motion clinical trial platform at Trousseau Hospital. An integral part of the Institute of Myology, the platform works in synergy with all the services and … [Read more]

Macrophage Biology: From Development to Functions Monday January 24th, 2022 – 12:00 – 13:00 Florent Ginhoux (Senior Principal Investigator, Singapore Immunology Network (SIgN) Agency for Science, Technology and Research (A*STAR)) On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr > More information on the presentation and the speaker   Muscle Monday Seminars are … [Read more]

Development of molecular vectors for targeted delivery of RNAi via receptor-mediated transport  Monday January 17th, 2022 – 12:00-13:00 Michel Khrestchatisky (CNRS Research Director, Director of the Institute for Neurophysiopathology ; Co-Founder & Scientific Counsel of the biotechnology company Vect-Horus) On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr > More information on the … [Read more]

Dear patients and their families, Dear donors, Dear partners, We wish you a very happy New Year and, especially, very good health. We hope the New Year gives you the energy needed to help you accomplish projects that are close to your heart. We extend our warm thanks to the generous donors who supported us … [Read more]

Palliative care in Neuromuscular Disorders Thursday December 16th, 2021 – 4pm-5pm (Paris time) Prof. Tracey Willis (Robert Jones and Agnes Hunt Orthopaedic and District Hospital NHS Trust, Oswestry, UK; Birmingham Children’s Hospital NHS Foundation Trust, UK) & Prof. Derek Willis (Shrewsbury and Telford Hospital NHS Trust · Severn hospice, Shrewsbury, UK) Inscription : https://aim.zoom.us/webinar/register/WN_7roScDOuTo-6yqjq2drabg   Organised by … [Read more]

Aging muscle in humans: a translational story Monday December 6th 2021 from 12:30 to 13:30  Walter R. Frontera, MD, PhD, FRCP (Professor in the Departments of Physical Medicine, Rehabilitation, and Sports Medicine (PM&R) and Physiology and Biophysics at the University of Puerto Rico (UPR)) On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr More … [Read more]

In a few days, the 2021 Telethon will kick off! Soprano, the mentor of this edition, will be in the spotlight alongside the AFM-Telethon, families and thousands of volunteers. Everyone will do their utmost to raise the counter during the 30 hours.   Among the highlights of this year, the 1st LOVERUN BY TÉLÉTHON. The … [Read more]

The operation “1000 researchers in schools in France and abroad” bringing together researchers, middle and high school students, for a moment of sharing intended to discover the reality of research, is underway and will end on the 3rd December, the day the Telethon 2021 will be launched.  Once again, this year, a large number of … [Read more]

Discover projet DATAMYO and digital challenges for research.  Vincent VARLET, Secretary General of the Institute of Myology, presented on Thursday 18 November at 6.30 p.m., our research center dedicated to the Science of Muscle and its DataMyo project which places digital and artificial intelligence at the heart of research development issues in order to improve diagnosis and … [Read more]