Events
RSS feed‘Fête de la Science’ – October 10th to 13th
From October 10th to 13th, we will celebrate ‘Fête de la science’, a science festival taking place in different French regions and organizations all around the country. On this special thematic week, researchers supported by AFM-Téléthon offer to share live discussions around research topics, directly from their labs. This event aims to better understand scientific … [Read more]
30 September: International Muscular Dystrophy Awareness Day
The 8th International Limb Girdle Muscular Dystrophy Awareness Day will take place on 30 September. Organised by the LGMD Awareness Foundation, the aim of this day is to draw attention each year to this group of rare neuromuscular diseases that impact on the lives of many people, children and adults, in all regions of the … [Read more]
10th edition of the “1000 researchers in schools” campaign – 7 Nov-3 Dec
The scientific campaign operation for secondary school students “1000 researchers in schools in France and abroad” is celebrating its 10th anniversary! It will take place between 7 November and 3 December in schools. These meetings between secondary school classes and scientists from laboratories at the cutting edge of medical research are a special opportunity to … [Read more]
One word to describe the congress “Myology 2022”
Intriguing, friendly, fast-paced, cross-disciplinary… it’s not easy to sum up the 7th edition of the Myology Congress organized by the AFM-Telethon in a single word. Discover the answers of the researchers who took up the challenge! Myology 2022 is over! During 4 days, researchers, clinicians and experts in myology were able to exchange on the … [Read more]
ERN EURO-NMD webinar, Sept. 22nd : Prof. Costanza Lamperti (Italy)
Mitochondrial Genetics Thursday September 22nd, 2022 – 16:00-17:00 (Paris time) Prof. Costanza Lamperti (lstituto Neurologico C.Besta, Milan, Italy) Please register here to attend the webinar Webinar organised by EURO-NMD in collaboration with ERN-RND and EAN.
September 15: International Myotonic Dystrophy Awareness Day
September 15, 2022 marks the second International Myotonic Dystrophy Awareness Day, which aims to highlight these rare diseases in order to improve diagnosis, care and support, as well as to advance research. What are myotonic dystrophies? Myotonic dystrophies – myotonic dystrophy type 1 (or DM1 or Steinert’s disease) and myotonic dystrophy type 2 (DM2) … [Read more]
Myology 2022: opening session
On Monday, September 12, took place the opening session of the 7th edition of the international congress Myology 2022 was held with Laurence Tiennot-Herment, president of AFM-Telethon, and the co-presidents of the event, Elisabeth McNally, a specialist in cardiac muscle, and Shahragim Tajbakhsh, a specialist in muscle biology.
World Duchenne Awareness Day: women speak out
September 7th is World Duchenne Muscular Dystrophy Awareness Day. It is an opportunity to raise awareness on this rare disease that affects 250,000 people worldwide. And if it is mostly boys who are affected, the disease also affects girls. To talk about it, this year, the theme chosen for the Awareness Day is “Women and … [Read more]
MCR Seminar – 2 September – Ana Ferreiro
Ana Ferreiro – Translational research in core myopathies : ‘from bedside to bench and back’ The Myology Center for Research (UMR974) is pleased to invite you to Ana Ferreiro’s seminar which will take place in the amphitheatre E of the Sorbone University Medical School, at 105 bd de l’Hôpital, 75013 Paris.
Save the date! 4th Neuromuscular Translational School, Nov. 21st-25th in Leiden, TheNetherlands
The upcoming 4th Neuromuscular Translational School (under auspices of EURO-NMD and TREAT-NMD) will be held from November 21st- November 25th in Leiden (The Netherlands). Organized by Annemieke Aartsma-Rus (Leiden University Medical Center, LUMC, the Netherlands & John Walton Muscular Dystrophy Research Center, Newcastle University, UK), Teresinha Evangelista (Institut de Myologie, Group Hospitalier Pitié-Salpêtrière, Paris, France), Silvere van der … [Read more]
