The Institute of Myology wishes you all the best for 2020
Welcome to the first issue of our newsletter for the new year!
The counter of the 2019 Telethon, which took place on December 6 and 7, displays 74 569 212 euros. A result that will help multiply victories ! “The 2019 Telethon is that of promises kept. Thirty years ago, there was nothing. Most rare diseases did not even have a name. Today, scientific victories have first names. I would like to tell the French people how grateful I am for their generosity and loyalty. Without them nothing would have been possible, and because of them everything becomes possible. The counter of the 2019 Telethon is crucial because it announces tomorrow’s victories. These victories for Jonas and all those who wait” said Laurence Tiennot-Herment, President of AFM-Telethon, at the end of the 30-hour marathon.
In 2020, Rare Disease Day will be on Saturday 29 February. Around the world, this rare day is a special time to show support for people with rare diseases and their families, and to help raise awareness of rarity: to be rare is to be many, to be strong and to be proud !
Also noteworthy is the arrival of a new Secretary General, Vincent Varlet, in an extremely dynamic news for the Institute. Enjoy your reading!
> Access the 77th newletter from the Institute of Myology
