According to a real-life study carried out in the UK, Germany, Italy, Spain and France involving 778 patients with myasthenia gravis and their 144 doctors :
- the time to diagnosis was 11 months, with an erroneous initial diagnosis in an average of 24.3% of cases,
- 45% of patients were classified as MGFA III or higher, compared with nearly 27% at the time of diagnosis,
- 62% have moderate to severe symptoms despite treatment in line with best practice recommendations,
- myasthenia has a negative impact on the daily lives of most patients, with fatigue being the most troublesome symptom,
- France has a higher rate of hospitalisation, at 34.4% over the past year, compared with 19.1% in Italy and the UK.
It should be noted that the data was collected between June and September 2020 in four of the five countries, including France, during the Covid-19 pandemic, which may have influenced some of the results.
