Charcot-Marie-Tooth disease: one in two orthotic devices prescribed is no longer used over time

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An online survey of 266 Italian patients suffering from Charcot–Marie–Tooth (CMT) disease shows the low use of lower–limb orthoses:

  • 70% of participants had received a prescription,
  • 59% said they had experienced complications (discomfort, pain) related to the orthosis,
  • 19% did not wear their orthoses,
  • 31% eventually abandoned them.

A French survey also showed that only half of CMT patients use the lower-limb orthoses prescribed. These results demonstrate the importance of optimising the process of prescribing and adapting orthoses to limit the risk of abandonment.

 

Use, tolerability, benefits and side effects of orthotic devices in Charcot-Marie-Tooth disease. Bertini A, Manganelli F, Fabrizi GM et al. J Neurol Neurosurg Psychiatry. 2023 Nov

 

Relationship between care pathway features and use or non-use of orthotic devices by individuals with Charcot-Marie-Tooth disease: a cross-sectional, exploratory study. Blouin C, Perrier A, Denormandie P et al. Disabil Rehabil. 2023 May

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