A functional scale to assess facial muscle involvement in FSH

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Facial muscle involvement is part of the classic description of facioscapulohumeral myopathy (FSH), including deficits of the orbicularis of the lips and eyes. Dutch researchers have developed a new scale to assess the importance and functional impact of this condition:

  • preparatory work with the patients themselves concerning their experience of the disease in this region of the body enabled the scale to be developed and improved,
  • a new approach derived from the Rasch method was used, which saved a lot of time in the analysis,
  • the functional score measured in this way could be used in medical follow-up or clinical trials.

 

Development and validation of the patient-reported “Facial Function Scale” for facioscapulohumeral muscular dystrophy. Mul K, Wijayanto F, Loonen TGJ et al. Disabil Rehabil. 2022 May 16:1-6.

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