I-Motion Children

Director: Prof. Odile Boespflug-Tanguy
Assistant Director: Dr Emmanuelle Lagrue

The I-Motion Institute was created at the behest of four partners, the Institute of Myology, AFM-Téléthon, the AP-HP (Paris public hospital system), and Sorbonne University, and is a paediatric clinical trial platform for neuromuscular diseases. Its objective is to meet the new needs created by the emergence of therapies for diseases that were long-considered incurable, many of which affect children.

Located at the site of the Trousseau Paediatric Hospital in the Division of Infant surgery headed by Prof. Raphaël Vialle, part of the AP-HP (the Paris public hospital system), in the Lemariey building, the I-Motion Institute is designed to treat young patients under the best conditions possible, in a tailored, welcoming and secure environment. It benefits from accessibility to the technical platforms, research structures and clinical services of Trousseau Hospital. All of the consultations and specialists can be found at a single location, which also facilitates the follow-up and treatment process, for the children and also for their parents.

As well as its medical care and clinical trial activities, the I-Motion Institute develops measurement tools to assess the efficacy of treatments, and is also responsible for collecting and storing biological samples.

 

Team members

Prof. Odile Boespflug-Tanguy, Paediatric Neurologist, Director
Dr Emmanuelle Lagrue, Paediatric Neurologist, Assistant Director
Khadija Boukouti, Executive Assistant

Dr Andreea Seferian, Paediatric Neurologist
Dr Silvana De Lucia, Neurologist
Dr Claudia Ravelli, Neurologist

Dominique Duchêne, Project Leader, Clinical Research Associates (CRA) Coordinator
Férial Toumi, Project Leader, Clinical Research Associate (CRA)
Erwan Gasnier, Project Leader, Clinical Research Associate (CRA)

Virginie Chê, Clinical Research Associate (CRA)
Arnaud Jollet, Clinical Research Associate (CRA)
Mélanie Villeret, PhD, Clinical Research Associate (CRA)
Dr Smaïl Ait Mohand, Clinical Research Associate (CRA)
Rose-Diana Ho, Clinical Research Associate (CRA)
Marta Peretti, PhD, Clinical Research Associate (CRA)
Aurélie Phelep, PhD, Clinical Research Associate (CRA)

Allison Grangé, Physiotherapist
Shotaro Tachibana, Physiotherapist
Darko Milascevic, Physiotherapist
Christelle Ramos, Occupational Therapist
Thibault Amalric, Psychologist

Fanny Moraux, Quality Engineer
Stéphanie Raymond, Medical Secretary

 

 

Key publications