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279 news items
Events
Our Annual Report 2022 is online
On 14/09/2023
2022 was a particularly eventful year, with the development of strategic cross-functional projects, the creation of a team to accelerate our digital transformation, the strengthening…
Events
Vianney, mentor of Telethon 2023, on 8 & 9 December
On 13/09/2023
After Matt Pokora, Soprano and Kev Adams, it’s singer and composer Vianney’s turn to join forces with researchers, families and thousands of volunteers across France in…
Events
ERN EURO-NMD webinar, 14th Sept. – Prof. Dr. Anders Oldfors (Sweden)
On 07/09/2023
Mitochondrial Myopathies 14th September 2023 – 4pm Paris time Prof. Dr. Anders Oldfors (University of Gothenburg and Sahlgrenska University Hospital, Sweden) Registration: https://zoom.us/webinar/register/WN_NndKEIeKQDSdxkFvlKWgJw Organised…
Events
A history of myology in Europe
On 31/08/2023
In an article published in July 2023, an Italian researcher traces the origins and evolution of myology. This medical science of muscle and its diseases…
Events
Newborn screening for primary carnitine deficiency can also detect mothers with few symptoms
On 31/07/2023
Two publications on neonatal screening (NNS) for primary carnitine deficiency, which has recently been added to the panel of diseases screened at birth in France,…
Events
Research
Caveolinopathy: clinical, histological and muscle imaging characteristics and follow-up of a multicentre retrospective cohort
On 21/07/2023
Caveolinopathies are a small group of neuromuscular diseases associated with dysfunction of a family of proteins located in muscle membrane crevices. The most common caveolinopathy…
Events
Review of the 2023 session of the Myology Summer School
On 13/07/2023
Andoni Urtizberea reviews the 2023 session of the Summer School of Myology, which was held from 12-16 June 2023 in a hybrid version. This was…
Events
Research
Bruno Cadot wins the Tremplin ASEAN prize awarded by the French Ministry of Higher Education and Research and the French Academy of Sciences
On 03/07/2023
Bruno Cadot, a researcher in the “Physiopathology & therapy of autosomal dominant centronuclear myopathy” team led by Marc Bitoun at the Myology Research Centre, has…
Events
Fabrice Chrétien appointed Director of Scientific Strategy at the Institute of Myology
On 30/06/2023
The aim of the Foundation of Myology project is to give new impetus to myology by broadening its scope to include muscle in all its forms,…
Events
ERN EURO-NMD webinar, 6th July – Prof. Karim Wahbi (France)
On 29/06/2023
Cardiac Involvement in Neuromuscular Diseases 6th July 2023 at 16:00 Paris Time Prof. Karim Wahbi, PhD, MD (APHP Hospital Cochin, Paris, Institute of Myology, Paris,…
Events
Summer School of Myology: For 25 years, 1,000 medical doctors from all over the world have been training in muscle science and medicine
On 14/06/2023
In 1998, the Institute of Myology, an international center of expertise on muscle, created the Summer School of Myology with the aim of disseminating knowledge…
Events
M&M’s – Muscle Monday Seminar – 12 June – Ryan Corces (USA)
On 05/06/2023
Deciphering the role of the noncoding genome in disease June 12th 2023 – 16:00 – 17:00 Ryan Corces (Gladstone Institute of Neurological Disease, University of…
Events
The Institute opens its doors on Saturday 3 June from 10 am to 5 pm
On 30/05/2023
As part of Muscle Week, the Institute of Myology invites you to dive into the heart of the “Muscle”. On Saturday 3 June, between 10am…
Events
MYOLOGY 2024 will be held in Paris from 22-25 April 2024
On 23/05/2023
Myology 2024, the 8th International Myology Congress, will be held in Paris from 22 to 25 April 2024. This 8th edition of the international congress…
Events
The Institute of Myology is proud to be a partner of the Genother Biocluster
On 23/05/2023
Genother is a biocluster dedicated to accelerating the development of gene therapy drugs. It is one of the five winners of the “Biocluster” call for…
Events
Institute seminar – 24 May – Dr Carsten Bönnemann, MD (USA)
On 23/05/2023
Childhood ALS and the Missing 6th Sense: Novel SPT and PIEZO2 associated Syndromes Wednesday 24 May – 11:00-12:00 Carsten G. Bönnemann, MD (NINDS, NIH, USA)…
Events
18th meeting of the East Parisian MNM Reference Centre: PMA and parenthood – 23 June
On 15/05/2023
The Reference Centre for Neuromuscular Diseases of Eastern Paris is organising its 18th meeting on the theme: Medically Assisted Reproduction and Parenthood – Clinical, Legal…
Events
M&M’s – Muscle Monday Seminar – 22 May – Michael Snyder (USA)
On 15/05/2023
Transforming Healthcare Using Deep Data and Wearables May 22nd, 2023 – 16:00 – 17:00 Michael Snyder (USA, Stanford Medicine – Stanford University Chair, Dept. of…
Events
ERN EURO-NMD webinar, 4th May – Dr Ulrike Schara-Schmidt (Germany)
On 27/04/2023
Floppy child 4th May 2023 at 16:00 Paris Time Dr Ulrike Schara-Schmidt (University Clinics Essen, Essen, Germany) Registration: https://zoom.us/webinar/register/WN_pY17Imm6S8-dAcL9JSXwQQ Organised by EURO-NMD in collaboration…
Events
ERN EURO-NMD webinar, 27th Apr. – Dr. Nicole B.M. Voet (The Netherlands)
On 20/04/2023
Fatigue in Neuromuscular Disorders 27th April 2023 at 16:00 Paris Time Dr. Nicole B.M. Voet (Radboud University Medical Center, the Netherlands) Registration: https://zoom.us/webinar/register/WN_CsaIEW5SQxyBoNKC5sYwbA Organised…