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1655 news items
Documentation
Advances in myasthenia gravis – 2026
On 03/06/2026
This document presents a selection of myasthenia gravis research news stories from the past year (ongoing observational studies and clinical trials, scientific and medical publications…).…
Research
Encouraging results for efgartigimod in juvenile myasthenia gravis
On 03/06/2026
Approved in France since 2022, efgartigimod (Vyvgart®) is currently indicated for adults with generalised autoimmune myasthenia gravis with anti-RACh antibodies. A multicentre retrospective study conducted…
Research
Researchers from the CRM’s REDs team attended the IDMC-15 conference
On 02/06/2026
The 15th International Myotonic Dystrophy Consortium Congress (IDMC-15), which brings together international scientists specialising in myotonic dystrophy every two years, was held this year from…
Events
4th European Myasthenia Gravis Day on 2 June
On 02/06/2026
2 June 2026 marks the 4th European Myasthenia Gravis Day. Created on the initiative of the All United for MG coalition, which brings together patient…
Research
For a comprehensive overview of diseases associated with the GBE1 gene
On 01/06/2026
American clinicians, in collaboration with the patient organisation APBD Research Foundation, have investigated muscle-affecting disorders linked to the GBE1 gene, which encodes the glycogen branching…
Events
ERN EURO-NMD webinar, 4 June: Prof. Kleopa Kleopas (Cyprus)
On 29/05/2026
Episode 6 – Nerve Pathology in Neuropathy Models (in EURO-NMD Neuropathology Webinar Series) Thursday 4 June 2026 – 16:00-17:00 Paris time Speaker: Prof. Kleopa Kleopas (the…
Research
In some forms of myositis, a decline in vital capacity during the first year is a poor prognostic sign
On 29/05/2026
American rheumatologists have investigated myositis complicated by interstitial lung disease, focusing in particular on the predictive value of respiratory function measurements over time: a cohort…
Research
CAR-T cells are effective in reducing autoantibodies in myasthenia gravis
On 29/05/2026
German researchers have developed and tested CAR-T cells using serum from patients with myasthenia gravis: this novel cell therapy aimed to enable effector cells to…
Research
A comparative analysis of antibody assays in a large Brazilian cohort of myositis patients
On 28/05/2026
Rheumatologists reviewed the clinical and immunological data of 351 adults diagnosed with inflammatory myopathy, with the aim of determining the prevalence of antinuclear antibodies by…
Research
Tools to better understand the deterioration of walking in hereditary or acquired neuropathies
On 27/05/2026
Researchers in Lille studied gait parameters in patients with Charcot-Tooth disease type 1A (33) and chronic inflammatory demyelinating polyneuropathy (CIDP) (31) under specific conditions: their…
Events
Institute seminar – 19 June – Yin Loon Lee (Singapore)
On 27/05/2026
Nucleus-cytoskeleton coupling in development and disease Friday 19 June 2026 – 10h30 – Auditorium of the Institute of Myology Yin Loon Lee, PhD (Group…
Research
The MG-ADL scale is not the most appropriate tool for assessing respiratory impairment in myasthenia gravis
On 26/05/2026
Danish and French clinicians investigated the diagnostic and predictive value of the Myasthenia Gravis Activities of Daily Living (MG-ADL) scale for respiratory function in patients…
Research
A new case of adult myopathy associated with the ACTA1 gene
On 21/05/2026
French, Romanian and Russian researchers, including experts from the Institute of Myology, report the clinical, histological and genetic findings of an adult diagnosed with muscular…
Research
Autism spectrum disorders in children with SMA type 1 are not that rare
On 20/05/2026
Brazilian clinicians sought to determine the prevalence of autism spectrum disorders (ASD) among children with the most severe form of SMA type 1 who had…
Research
Significant variability in autoantibody tests
On 19/05/2026
Autoantibody testing is a key step in the diagnosis of many autoimmune diseases, including myositis. Against this backdrop, an international consortium of laboratories responsible for…
Events
Open Day for the general public at the Institute on Sat. 6 June
On 18/05/2026
Come and build up your knowledge! To mark the 4th edition of Muscle Week, the Institute of Myology is opening its doors on Saturday 6…
Research
Researchers from the institute’s NMR laboratory attending the ISMRM 2026 annual conference
On 18/05/2026
. Four experts from the NMR Imaging and Spectroscopy Laboratory will present the team’s work at the annual ISMRM (International Society for Magnetic Resonance in…
Events
ERN EURO-NMD webinar, 21 May: Prof. Marina Grandis (Italy)
On 15/05/2026
Episode 5 – Clinical Cases Requiring Nerve Biopsy (in EURO-NMD Neuropathology Webinar Series) Thursday 21 May 2026 – 16:00-17:00 Paris time Speaker: Prof. Marina Grandis (IRCCS…
Patient care
A new national protocol for the diagnosis and management of calpainopathies
On 15/05/2026
New guidelines for the diagnosis and management of calpainopathies (LGMD R1 and LGMD D4) have recently been published with a view to optimising clinical practice…
Events
M&Ms – Muscle Monday Seminar – 18 May – Dr Maartje Huijbers (The Netherlands)
On 13/05/2026
Pathogenic Mechanisms in Myasthenia Gravis With a Special Focus on MuSK MG: From Molecular Insight to Clinical Implications 18 May 2026 from noon to 1pm…