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The Institute is recruiting a Fellow (M/F) for the service of Neuro-Myology

The service of Neuro-Myology of the reference center for rare neuromuscular diseases and muscle channelopathies at Institute of Myology, based in PitiĂ©-SalpĂȘtriĂšre Hospital in Paris, France, offers a full-time fellow position as from January 2021, for a 6- or 12-month period. The fellow’s activity includes training and practice and encompasses the clinical, electromyographic and pathological … [Read more]

Dr Emmanuelle Lagrue, MD-PhD, pediatric neurologist, joins Généthon and I-Motion

Dr Emmanuelle Lagrue, MD-PhD, pediatric neurologist, simultaneously joins GĂ©nĂ©thon, the AFM-Telethon laboratory dedicated to gene therapy, as Senior Medical Manager, and I-Motion, the pediatric clinical trials platform of the Institute of Myology, as Deputy Director. Holder of a university degree in pediatric neurology and a doctorate in Sciences, Dr Emmanuelle Lagrue multiplies expertises. After her pediatric … [Read more]

The Institute is looking for a Project Manager (M/F) for ERN EURO-NMD

Located in Paris at the heart of the largest European hospital, PitiĂ©-SalpĂȘtriĂšre, the Institute of Myology was created in 1996 by AFM-Telethon, a patient’s organization. Its goal: Promote Myology and have it accepted as a standalone clinical and scientific discipline. The Institute of Myology coordinates, around the patient, medical care, basic research, applied research, clinical … [Read more]

Release of the 81st newsletter from the Institute

WMS 2202: Experts from the Institute of Myology take the floor The 25th International Annual Congress of the World Muscle Society, which brings together muscle experts from all over the world, will highlight the work of many researchers from the Institute of Myology created by AFM-Telethon. The French popular singer Matt Pokora will be the … [Read more]

Launching of “1000 researchers in high schools”

The scientific information event for high school students is being continued for the 8th year. It will take place from November 2 to 30, 2020. Faced with the totally unprecedented 2020 context, the will is intact to make every effort to ensure that great meetings take place, face-to-face as much as possible, and by videoconference … [Read more]

“FĂȘte de la Science” at the Institute: 6-10 October

The operation, organized each year by the Ministry in charge of Education, Research and Innovation, aims to allow everyone to discover the world of science and meet the women and men who do science today. It will take place virtually this year. From October 6 to 9, the AFM-Telethon will offer interactive discussion sessions with … [Read more]

Experts from the Institute of Myology take the floor

Between 28 September and 2 October, the 25th International Annual Congress of the World Muscle Society, which brings together muscle experts from all over the world, will highlight the work of many researchers from the Institute of Myology, the centre of expertise on muscle and its diseases that was created by AFM-Telethon. From fundamental research … [Read more]

Relationship between clinical status and physical activity in patients suffering from inflammatory myopathies – Interview with O. Landon-Cardinal and D. Bachasson

OcĂ©ane Landon-Cardinal, MD*, and Damien Bachasson, PhD** are co-first authors of an article published in Seminars in Arthritis and Rheumatism. The article relates to the relationship between clinical status (symptom severity) and physical activity in patients with inflammatory myopathies (or idiopathic myositis). What are the origins/overall context of this project?‹ Myositis is a heterogeneous group … [Read more]

DMD: encouraging results for the PF-06939926 gene therapy product

A phase Ib trial of PF-06939926 in Duchenne muscular dystrophy among 9 patients shows that this gene therapy product allows dystrophin to be produced in the muscle and improves motor function, 12 months after the treatment has been injected. PF-06939926, developed by Pfizer, is a gene therapy drug candidate being evaluated for Duchenne muscular dystrophy … [Read more]

In dystrophic mdx mouse, desmin prevents muscle wasting, exaggerated weakness and fragility and fatigue

Duchenne muscular dystrophy (DMD) is a serious neuromuscular disease caused by a dystrophin deficiency. Desmin, like dystrophin, is associated with costameric structures connecting the sarcomeres to the extracellular matrix which contributes to muscle function. In this study, French experts including researchers from the Institute of Myology tried to provide additional information on the roles of … [Read more]