With the advent of innovative therapies for SMA, the issue of bulbar disorders is becoming increasingly important. An international consortium of specialists has drawn up recommendations for standardised assessment of these impairments:
- 21 speech therapists, 11 physiotherapists, five neurologists, four occupational therapists and one dentist first made an inventory of existing tools and then made choices using Delphi-type methodology.
- The emphasis was on the feasibility of the investigations, their universal nature and their ability to assess SMA patients of all ages and types,
This work represents a first step in the construction of a composite scale for assessing bulbar function in this patient population.
