The AFM-Telethon teams conducted a study of 119 patients with neuromuscular diseases (mainly Duchenne muscular dystrophy but also limb-girdle muscular dystrophy, congenital muscular dystrophy, proximal spinal muscular atrophy, etc.) and dependent on ventilatory support.
- More than two thirds of the patients (81 participants) rated their quality of life as good or even excellent and 4 described it as poor.
- The ventilation interface did not influence quality of life.
- The two main factors associated with better quality of life were the length of time on ventilation and independent living (alone or in a flat).
