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THE INSTITUTE OF MYOLOGY
Governance and organisation
The Institute of Myology was created in 1996
at the initiative of the AFM-Téléthon association.
This one-of-a-kind institute coordinates medical care, basic research, applied research, clinical research and teaching around the patient. It is an international reference centre that takes part in many clinical trials and studies, mainly on neuromuscular diseases but also on muscle injuries linked to elite sport or to ageing.
The Institute of Myology brings together many specialists in care and in clinical and basic research. It pools the resources of a private partner, the Institute of Myology Association (“Association Institut de Myologie” in French), and of public partner institutions with complementary expertise: Assistance Publique-Hôpitaux de Paris (AP-HP), the Paris public hospital system; the French Alternative Energies and Atomic Energy Commission (CEA); the French National Institute of Health and Medical Research (Inserm); Sorbonne University; and the French National Centre for Scientific Research (CNRS). Each entity has its own organisation and its own dedicated partners.
The Institute of Myology Association was created in 2005 as a non-profit association governed by the French Act of 1 July 1901, whose founding members are AFM-Téléthon and Généthon. Its mission is to facilitate the coordination of the Institute of Myology’s activities.
Board of Directors
The Institute of Myology Association is headed by a Board of Directors and an operational management team.
The President of the Institute of Myology Association is Laurence Tiennot-Herment.
She also chairs AFM-Téléthon, Généthon and the Biotherapies Institute for Rare Diseases.
Treasurer
- Jacques Salama (former public works engineer)
Other Board members
- Serge Braun (head of neuromuscular strategy at Généthon)
- Serge Bromberg (founder of the production company Lobster Films)
- Christian Cottet (President of the Centre for Stem Cell Studies (CECS) I-Stem, member of the AFM-Téléthon Board of Directors)
- Marina Granjon (funding adviser, member of the AFM-Téléthon Board of Directors)
- Alain Pelc (former director of the statistics and studies department of a French social security fund)
Management of the Institute of Myology Association
Dr Vincent Varlet
Secretary General
Olivier Gramail
Deputy Secretary General
Prof. Fabrice Chrétien
Director of Scientific Strategy
Coordination division
This cross-functional division supports the management team and brings together the resources and expertise required for the whole organisation to run smoothly: Human Resources, Legal and Tax Affairs, Business Development, Finance, Strategic Projects, Grants Office, Data, Information Technology, Communications, Philanthropy (patronage and fundraising) and General Services.
It plays a key role in providing ongoing support to all the scientific and medical teams and helps create the value that sustains the excellence of our Institute.