A qualitative study of the discrepancy between patient expectations and assessment practices in 5q-adult spinal muscular atrophy in France

Montagu G, Boyer FC, Gargiulo M, Pouplin S, Barrière A, Berling E, Bonnyaud C, Cintas P, Hogrel JY, Le Goff L, Marchadier B, N’Dah Sekou G, Orlikowski D, Prigent H, Pruvot A, Ropars J, Salort-Campana E, Stojkovic T, Nicolas G, Attarian S, Laforet P

Journal of Neuromuscular Diseases