Institut myologie maladies rares pitié-salpêtrière

About us

Located in Paris, at the heart of Europe’s largest hospital, The Pitié-Salpêtrière Hospital, the Institute of Myology was created in 1996 under the leadership of an association of patients and their parents, the AFM-Telethon.

Our goal: to promote the existence, recognition and development of myology as a separate discipline. Whether diseased, healthy, injured, athletic, or ageing … muscle, on which our vital functions depend, has become a real innovative model for medical research.
With a patient focus, the Institute of Myology coordinates the medical management, basic, applied and clinical research and education. It is an international reference centre that participates in numerous trials and clinical studies, mainly concerning neuromuscular diseases but also muscle damage related to high performance sports or ageing.
Since 2005, the Institute of Myology is an association governed by the law of 1 July 1901, whose founders are the AFM-Téléthon and Généthon. The Institute of Myology Association’s mission is to facilitate the coordination of site activities, in partnership with five public guardianship: Public Assistance – Paris Hospitals (Assistance publique -Hôpitaux de Paris – AP-HP), France’s Atomic Energy Commission (Commissariat à l’Energie Atomique – CEA), the French National Health and Medical Research Institute (Institut National de la Santé and de la Recherche Médicale – INSERM), Université Pierre et Marie Curie (UPMC) and the National Centre of Scientific Research of Paris (Centre National de la Recherche Scientifique – CNRS).

Today, the Institute of Myology boasts 250 experts of muscle and its diseases, 28,270 patient records since its beginning, 4100 annual consultations, a myology research centre…