Find here all our news, information and recommendations in real time concerning the Covid-19 epidemic: adaptation of the activity of the institute’s teams to the health situation, recommendations for neuromuscular patients, expert opinion, interviews with doctors…
The Institute of Myology teams are mobilising
to tackle COVID-19
Message from Pr. Bertrand Fontaine, Medical and Scientific Director of the Institute of Myology, Head of the service of Neuro-Myologie and Director of the Myology Centre for Research UMR 974, and Dr. Vincent Varlet, Secretary General of the Institute of Myology. “Our health professionals and researchers, who are on the frontline at the Pitié-Salpêtrière Hospital in Paris, are mobilising to help patients.“
All the health professionals and care practitioners in the Neuro-Myology Department have met to identify, as a priority, the most fragile neuromuscular patients in order to ensure their continued care and follow-up in a strengthened health framework, and thus to provide them with all the necessary help they need (reception, tele-consultation, follow-up, etc.). If you have any questions related to your neuromuscular disease, please contact your country’s health authorities.
COVID-19, consultations and clinical trials:
6 questions for Dominique Duchêne
Interview with Dominique Duchêne, Project Manager, Clinical Research Associate (CRA) Manager at I-Motion, the paediatric clinical trial platform headed by Prof. Odile Boespflug-Tanguy. I-Motion conducts, as investigators, industrial therapeutic trials and also develops disease natural history trials as sponsor. Besides, a specialised consultation in the field of neuromuscular diseases is provided at the hospital.
The onset of the epidemic forced the team to partially close the hospital facilities. Priority has been given to the safety of the young patients who are frail in terms of having cardiac and/or respiratory problems.
COVID-19 and psychological counselling :
5 questions for Prof. Marcela Gargiulo
Interview with Prof. Marcela Gargiulo, clinical psychologist. She undertakes consultations, research and teaching in the area of neuromuscular diseases. Her team, in synergy with the doctors at the Institute of Myology, has implemented new remote consultation measures to respond to the COVID-19 health crisis. Patients or their families have therefore been reassured, supported or redirected according to the situation faced, with each situation being so unique.
COVID-19 and clinical trials in adults:
6 questions for Kubéraka Mariampillai
Interview with Kubéraka Mariampillai, Project Manager for the Adult Clinical Trials platform at the Institute of Myology, headed by Prof. Bertrand Fontaine and coordinated by Dr Giorgia Querin, and member of “Inflammatory Myopathies and Innovative Targeted Therapies” team 8 at the Research Centre, headed by Prof. Olivier Benveniste. Following the health crisis, the activity of the platform was quickly reorganized: patient inclusions and protocol start-ups were postponed. An investigation aid was then set up for the CORIMMUNO-19 trial, which assesses the benefit / risk ratio of various treatments on a cohort of patients hospitalized for SARS-CoV-2 infection. About twenty volunteers from the institute, doctors, research directors, engineers, PhD students, joined the clinical researchers, partially reassigned to manage the emergency.
COVID-19 and clinical research:
4 questions for Prof. Olivier Benveniste
Interview with Prof. Olivier Benveniste, Director of research Team 8, “Inflammatory myopathies and innovative targeted therapies“, at the Institute’s Myology Centre for Research, University Professor – Hospital Practitioner at the Department of Internal Medicine and Clinical Immunology (the DMIIC) at the Pitié-Salpêtrière Hospital, Coordinator for the French National Myositis Network. Since the start of the current health crisis, he has been mobilized with his teams on several fronts and they must constantly organize themselves and rethink their way of working.
COVID-19 and clinics:
4 questions for Dr Guillaume Bassez
Interview with Guillaume Bassez, research professor and neurologist at the Institute of Myology’s Service of Neuro-Myology about the complete review of the organization of the service and the implementation as a priority of a continuity of care procedure for patients at high cardiac and respiratory risks.
COVID-19 and clinical trials:
4 questions for Dr Giorgia Querin
Interview with Giorgia Querin, neurologist and Coordinating Doctor for the adult clinical trials platform at the Institute of Myology since January 2020. The organization has been reviewed to adapt to the situation and give priority to the clinical management of patients. Several measures have been undertaken in the Service of Neuromyology and in the adult clinical trials platform in response to the COVID-19 health crisis.