Blog Archives

Thanks to the mobilization of donors, volunteers, families, partners, all united during this great celebration of solidarity for the benefit of the fight against rare diseases, the final collection of the 2021 Telethon amounts to €85,933,166. To all, thank you! On December 3 and 4, 2021, the French once again attended the Telethon. Driven by … [Read more]

Dear patients and their families, Dear donors, Dear partners, We wish you a very happy New Year and, especially, very good health. We hope the New Year gives you the energy needed to help you accomplish projects that are close to your heart. We extend our warm thanks to the generous donors who supported us … [Read more]

In a few days, the 2021 Telethon will kick off! Soprano, the mentor of this edition, will be in the spotlight alongside the AFM-Telethon, families and thousands of volunteers. Everyone will do their utmost to raise the counter during the 30 hours. Among the highlights of this year, the 1st LOVERUN BY TÉLÉTHON. The principle: … [Read more]

The 26th International Congress of the World Muscle Society, which brings together muscle experts from around the world, was held September 20-24, providing an opportunity to highlight the work of many of the institute’s researchers and clinicians.  Save the date! On October 21, at 8:30 p.m., the Casino de Paris will host an exceptional show … [Read more]

Save the date!   Because you are all impatient – and so are we – to meet face to face, AFM-Téléthon is pleased to announce that it will hold and ” in person” its 7th International Myology Congress, from September 12th to 15th, 2022 at the Nice Acropolis Congress Center, followed by mitoNice from September … [Read more]

Prof. Fabrice Chrétien joined the teams of the Institute of Myology on June 15 as Director of the Center for Neuromuscular Exploration and Assessment which is currently composed by a staff of thirty persons. It encompasses three laboratories and a tissue bank: the Neuromuscular Physiology and Evaluation Laboratory, the NMR and Spectroscopy Laboratory, the Morphological Unit and the biological … [Read more]

Welcome to the 85th issue of our newsletter! The Institute’s Summer School of Myologiy is coming and becomes AcadeMYO. Entirely virtual this year, it will take place from July 5 to 9, in partnership with the European Reference Network EURO-NMD. The new digital format includes a significant portion of pre-available lectures (approximately 40 recorded lessons) and … [Read more]

Welcome to the latest issue of our newsletter! The COVID-19 vaccination campaign is being discussed everywhere. It raises multiple questions, but do we know why vaccines, and in particular messenger RNA vaccines, have to be injected intramuscularly (into the muscle)? Whether it’s a vaccine for COVID-19, the flu or hepatitis B, the optimum route of … [Read more]

Dear patients and families, Dear donors, Dear partners, We wish you a very happy New Year and excellent health. We hope this New Year brings you the energy for renewal needed to accomplish the projects close to your heart, and we hope these projects are numerous and inspiring! We warmly thank all the generous donors … [Read more]

Regarding this second period in the health crisis we are going through and strengthened by the measures provided in the first period, our teams have been able to adapt and know how to work in an epidemic situation. Some of our staff have unfortunately been affected but outside of the scope of their work, indicating that … [Read more]