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Aly Bourguiba winner of the 2026 Graine de Chercheur Prize

Aly Bourguiba is currently a third-year PhD student in the ‘Maintaining muscle mass and function – optimising AAV-based gene therapies (MOOVE)’ team, led by France Pietri-Rouxel at the Institute’s Center of Research in Myology. Winner of the 2026 Graine de Chercheur prize awarded by the Prolific association, he has been invited to present his research … [Read more]

ERN EURO-NMD webinar, 19 March: Prof. Michael Benatar (USA)

Advances in understanding pre-symptomatic ALS: implications for disease prevention Thursday 19 March 2026 – 16:00-17:00 Paris time Prof. Michael Benatar (University of Miami, USA) > + infos   Organized by EURO-NMD in collaboration with ERN-RND

A football legends’ match in benefit of ALS research

The Institut de Myologie Association is partnering with AS SAINT-ÉTIENNE, the organiser of the Match of the Heroes, which will take place on 31 May at the Geoffroy-Guichard Stadium in Saint-Étienne. The match will see the Heroes team – made up of figures from the worlds of sport and culture – take on a team … [Read more]

ERN EURO-NMD webinar, 12 March: Prof. Martin Turner (UK)

EXPERTS-ALS – a Bayesian biomarker-led drug screening platform in ALS Thursday 12 March 2026 – 16:00-17:00 Paris time Prof. Martin Turner (University of Oxford, UK) > + infos   Organized by EURO-NMD in collaboration with ERN-RND

ERN EURO-NMD webinar, 5 March: Prof. Ammar Al-Chalabi (UK)

Autonomic and non-motor symptoms in ALS Thursday 05 March 2026 – 16:00-17:00 Paris time Prof. Ammar Al-Chalabi (King’s College London, UK) > + infos   Organized by EURO-NMD in collaboration with ERN-RND

ERN EURO-NMD webinar, 26 Feb.: Prof. Jim Bonham (UK)

Genetics Month episode 4: Newborn Screening and Impact on Rare Diseases Thursday 26 February 2026 – 16:00-17:00 Paris time Prof. Jim Bonham (President of the International Society of Neonatal) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

First Network-Wide Event ENTRY-DM: a European launch in Paris to train a new generation of researchers

The ENTRY-DM doctoral network (Interdisciplinary doctoral training on oligonucleotide-based therapies for myotonic dystrophy) officially launched in March 2025, and the 14 international doctoral students recruited began their thesis projects in autumn 2025. In this context, the network’s first global meeting, the Network-Wide Event (NWE), was held in Paris from 26 to 30 January 2026, marking … [Read more]

ERN EURO-NMD webinar, 19 Feb.: Dr. Marcella Ner (Italy)

Genetics Month episode 3: Genetics of Amyotrophic Lateral Sclerosis and Impact on New Therapies Thursday 19 February 2026 – 16:00-17:00 Paris time Dr. Marcella Neri (University Hospital St Anna, Ferrara, Italy) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

The Institute acquires a new, latest-generation multimodal confocal microscope

Bruno Cadot, researcher at the Center of Research in Myology and head of the MyoImage technology platform, oversaw the acquisition of a latest-generation Nikon AXR-NSPARC confocal microscope equipped with an N-STORM super-resolution module*. This new high-performance device adds to the platform’s range of cutting-edge imaging and image analysis equipment. Interview with Bruno Cadot What are the … [Read more]

Full speed ahead to the 4th Muscle Week and the 2026 Muscle Conference!

The Winter Olympic Games offer a timely reminder of a fundamental truth: muscle is not only responsible for athletic prowess and sporting performance, it is, above all, a major public health issue. By interacting with many organs, muscles are central to our overall good health. To strengthen public awareness and promote the integration of muscle health into public policy, the Institute of Myology and the AFM-Téléthon will host two major events in 2026: the 4th Muscle … [Read more]