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Highlights from the 2025 AcadeMYO Winter School

The Institute of Myology successfully organised the 2025 AcadeMYO Winter School, held entirely online, bringing together an international community to address the major current challenges in myology. This edition, held from 8 to 10 December, welcomed 32 participants from 16 countries — the United Kingdom, Brazil, New Zealand, Lebanon, Spain, Germany, Austria, the Philippines, Portugal, Italy, Russia, Kyrgyzstan, Australia, France and … [Read more]

MyoData: how data produced at the Institute is structured, validated and used – Interview with Maxime Jacoupy

Maxime Jacoupy, Director of Data at the Institute of Myology, oversees the MyoData platform. With a PhD in neuroscience and a master’s degree in artificial intelligence, he embodies dual expertise at the interface of biomedical sciences and digital technologies. His mission: to structure, ensure the reliability of, and make usable the data produced at all … [Read more]

ERN EURO-NMD webinar, 18 Dec.: Prof. Giorgio Tasca (UK) 
& Harmen Reyngoudt, PhD (France)

Update on Diagnostic Imaging in Neuromuscular Diseases Thursday 18 December 2025 – 16:00-17:00 Paris time Prof. Giorgio Tasca (John Walton Muscular Dystrophy Research Centre, Newcastle University, UK) & Harmen Reyngoudt, PhD (Institute of Myology, Paris, France) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

M&M’s – Muscle Monday Seminar – 15 Dec. – Dr Pascal Maire (France)

Fast subtype myofiber specialization: motoneuron-myofiber crosstalk 15 December 2025 from noon to 1pm (Paris time) Dr Pascal MAIRE (Institut Cochin. INSERM U1016, CNRS UMR 8104, U.Paris Cité. Physiopathology of the neuromuscular system) Invited by Capucine Trollet and Denis Furling   The seminar will be hybrid in AMPHI Charcot (Pitié Salpêtrière) and on zoom   On … [Read more]

ERN EURO-NMD webinar, 11 Dec.: Dr. Tonje Elgsås (Norway) & Arabela Acălinei (EAMDA)

Mental health in Neuromuscular Disorders Thursday 11 December 2025 – 16:00-17:00 Paris time Dr. Tonje Elgsås (Frambu Resource center for rare diseases, Norway) & Arabela Acălinei (European Alliance of Neuromuscular Disorders Associations (EAMDA) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

ERN EURO-NMD webinar, 10 Dec.: Prof. Michelangelo Mancuso (Italy)

Management of Fatigue in Myopathies Wednesday 10 December 2025 – 16:00-17:00 Paris time Prof. Michelangelo Mancuso (Azienda Ospedaliera University of Pisa, Italy) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

M&M’s – Muscle Monday Seminar – 8 Dec. – Dr Yasmine Sebti (France)

Timing Matters: how the macrophage Clock regulates Skeletal Muscle Regeneration 8 December 2025 from noon to 1pm (Paris time) Dr Yasmine SEBTI (Institut Pasteur de Lille, France) Invited by Capucine Trollet   The seminar will be 100% virtual on zoom   On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   M&M’s seminar organised … [Read more]

ERN EURO-NMD webinar, 4 Dec.: Prof. Hanns Lochmüller (Canada)

Update on Congenital Myasthenic Syndromes Thursday 04 December 2025 – 16:00 – 17:00 Paris time  Prof. Hanns Lochmüller (University of Ottawa, Canada) > + infos   Organized by EURO-NMD in collaboration with ERN-RND

M&M’s – Muscle Monday Seminar – 24 nov. – Dr Juliette Nectoux (France)

Circulating free DNA and diagnosis – Focus on non-invasive prenatal diagnosis of monogenic disease Monday 24 November – from noon to 1pm (Paris time) Dr Juliette NECTOUX (APHP, Paris) Invited by Gisèle Bonne and Tanya Stojkovic The seminar will be in French with slides in English   HYBRIDE version in Amphi CHARCOT (Pitié Salpêtrière Hôpital) and … [Read more]

ERN EURO-NMD webinar, 26 Nov.: Dr. Adela Della Marina (Germany)

Myasthenia Gravis in the pediatric age Thursday 27 November 2025 – 16:00 – 17:00 Paris time Dr. Adela Della Marina (University Hospital Essen, Germany) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.