Institute events

Nutrition in Myopathies, Including Supplements Thursday 30 October 2025 – 16:00 – 17:00 Paris time  Marianne Nordstrøm, PhD (Frambu Resource Centre for Rare Disorders and Oslo University Hospital, Norway) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

Pompe Disease – Current Treatment and Future Prospects Thursday 23 October 2025 – 16:00 – 17:00 Paris time Prof. Benedikt Schoser (Dept. of Neurology, Ludwig-Maximilians-University of Munich, Germany) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

Two young researchers, a PhD student and a postdoctoral fellow, from the Muscle organization & therapy of dominant centronuclear myopathy team co-led by Marc Bitoun and Stéphane Vassilopoulos at the Institute’s Center of Research in Myology, presented their work at two international myology conferences. At the 30th International Congress of the World Muscle Society (WMS), … [Read more]

The Institute of Myology, an international centre of expertise, coordinates diagnostic, assessment, care, fundamental and applied research, clinical research and teaching activities centred around the patient. Our priority: Innovate to cure. Our ambition: To find treatments for neuromuscular disorders. Our mission: To deepen our understanding of muscle dysfunction in order to develop therapeutic approaches to … [Read more]

On Monday 6 and Tuesday 7 October, we had the pleasure of welcoming 80 visitors at the Institute of Myology for “Fête de la Science” (Science Festival). The programme included: a presentation of the Institute, its missions, activities and expertises, a tour of the Neuromuscular Physiology and Evaluation Laboratory with demonstrations of the evaluation tests … [Read more]

Management of HyperCKemia Thursday 16 October 2025 – 16:00 – 17:00 Paris time Prof. Antonio Toscano (University of Messina, Italy) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.  

The 11th Limb Girdle Muscular Dystrophy Awareness Day takes place on 30 September. Organised by the LGMD Awareness Foundation, the aim of this day is to draw attention each year to this group of rare neuromuscular diseases that have an impact on the lives of many people, children and adults alike, in every region of … [Read more]

AAV.U7snRNA as a platform to treat neuromuscular disorders 22 September – from 12 to 1pm (Paris time) Dr Nicolas WEIN (Nantes, France) More information on the presentation and the speaker On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   M&M’s seminar organised by the Center of Research in Myology, at the Institute … [Read more]

Every year since 2001, 21 September has been World Myositis Day. Myositis is an autoimmune muscle disease that can affect adults and children. It causes weakness, muscle wasting and fatigue, and sometimes affects the skin, heart and lungs. There are different forms of the disease (dermatomyositis, inclusion myositis, etc.), with different mechanisms and symptoms. A … [Read more]