Institute events
RSS feedERN EURO-NMD webinar, 4 Dec.: Prof. Hanns Lochmüller (Canada)
Update on Congenital Myasthenic Syndromes Thursday 04 December 2025 – 16:00 – 17:00 Paris time Prof. Hanns Lochmüller (University of Ottawa, Canada) > + infos Organized by EURO-NMD in collaboration with ERN-RND
M&M’s – Muscle Monday Seminar – 24 nov. – Dr Juliette Nectoux (France)
Circulating free DNA and diagnosis – Focus on non-invasive prenatal diagnosis of monogenic disease Monday 24 November – from noon to 1pm (Paris time) Dr Juliette NECTOUX (APHP, Paris) Invited by Gisèle Bonne and Tanya Stojkovic The seminar will be in French with slides in English HYBRIDE version in Amphi CHARCOT (Pitié Salpêtrière Hôpital) and … [Read more]
ERN EURO-NMD webinar, 26 Nov.: Dr. Adela Della Marina (Germany)
Myasthenia Gravis in the pediatric age Thursday 27 November 2025 – 16:00 – 17:00 Paris time Dr. Adela Della Marina (University Hospital Essen, Germany) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
ERN EURO-NMD webinar, 26 Nov.: Prof. Dr. med. Andreas Meisel (Germany)
Innovative therapies in Myasthenia Gravis Wednesday 26 November 2025 – 16:00 – 17:00 Paris time Prof. Dr. med. Andreas Meisel (Charité – Universitätsmedizin Berlin (CCM), Germany) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
M&M’s – Muscle Monday Seminar – 17 nov. – Dr Mario Amendola (France)
Gene Editing for DMD Treatment Monday 17 November – from noon to 1pm (Paris time) Dr Mario AMENDOLA (Genethon, Paris, France) On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr M&M’s seminar organised by the Center of Research in Myology, at the Institute of Myology.
ERN EURO-NMD webinar, 20 Nov.: Prof. Valentina Damato (Italy)
Update on antibodies in Neuromuscular Junction Disorders Thursday 20 November 2025 – 16:00 – 17:00 Paris time  Prof. Valentina Damato (University of Florence, Italy) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
ERN EURO-NMD webinar, 6 Nov.: Dr. Lorenzo Maggi (Italy) & Lutgarde Allard (EuMGA & Patient expert)
How to evaluate patients with Myasthenia Gravis Thursday 6 November 2025 – 16:00 – 17:00 Paris time Dr. Lorenzo Maggi (Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy) & Lutgarde Allard (President of the European Myasthenia Gravis Association (EuMGA & Patient expert) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
M&M’s – Muscle Monday Seminar – 10 Nov. – Dr Anna Urciuolo (Italy)
Advanced organoids for studying the human neuromuscular system in vitro Monday 10 November – from 12 to 1pm (Paris time) Dr Anna URCIUOLO (Italy) invited by Dr Sestina Falcone More information on the presentation and the speaker On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr M&M’s seminar organised by the … [Read more]
Focus on I-Motion clinical trial platforms
Interview with Dr Marina Colella, Deputy Director and Head of Medical Staff at I-Motion, and Saadane Kirouani, Deputy Director and Head of Non-Medical Staff. What is the mission of the I-Motion platforms? S.K. The Institute of Myology wanted to set up facilities capable of testing treatments under the best conditions by creating two integrated platforms … [Read more]
ERN EURO-NMD webinar, 30 Oct.: Marianne Nordstrøm (Norway)
Nutrition in Myopathies, Including Supplements Thursday 30 October 2025 – 16:00 – 17:00 Paris time Marianne Nordstrøm, PhD (Frambu Resource Centre for Rare Disorders and Oslo University Hospital, Norway) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
