Institute events
RSS feedERN EURO-NMD webinar, 26 Feb.: Prof. Jim Bonham (UK)
Genetics Month episode 4: Newborn Screening and Impact on Rare Diseases Thursday 26 February 2026 – 16:00-17:00 Paris time Prof. Jim Bonham (President of the International Society of Neonatal) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
First Network-Wide Event ENTRY-DM: a European launch in Paris to train a new generation of researchers
The ENTRY-DM doctoral network (Interdisciplinary doctoral training on oligonucleotide-based therapies for myotonic dystrophy) officially launched in March 2025, and the 14 international doctoral students recruited began their thesis projects in autumn 2025. In this context, the network’s first global meeting, the Network-Wide Event (NWE), was held in Paris from 26 to 30 January 2026, marking … [Read more]
ERN EURO-NMD webinar, 19 Feb.: Dr. Marcella Ner (Italy)
Genetics Month episode 3: Genetics of Amyotrophic Lateral Sclerosis and Impact on New Therapies Thursday 19 February 2026 – 16:00-17:00 Paris time Dr. Marcella Neri (University Hospital St Anna, Ferrara, Italy) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
The Institute acquires a new, latest-generation multimodal confocal microscope
Bruno Cadot, researcher at the Center of Research in Myology and head of the MyoImage technology platform, oversaw the acquisition of a latest-generation Nikon AXR-NSPARC confocal microscope equipped with an N-STORM super-resolution module*. This new high-performance device adds to the platform’s range of cutting-edge imaging and image analysis equipment. Interview with Bruno Cadot What are the … [Read more]
Full speed ahead to the 4th Muscle Week and the 2026 Muscle Conference!
The Winter Olympic Games offer a timely reminder of a fundamental truth: muscle is not only responsible for athletic prowess and sporting performance, it is, above all, a major public health issue. By interacting with many organs, muscles are central to our overall good health. To strengthen public awareness and promote the integration of muscle health into public policy, the Institute of Myology and the AFM-Téléthon will host two major events in 2026: the 4th Muscle … [Read more]
ERN EURO-NMD webinar, 12 Feb.: Dr. Fernanda Fortunato (Italy)
Genetics Month episode 2: CPMS Use and Value for Genetic Case Discussions Thursday, 12 February 2026 – 16:00-17:00 Paris time Dr. Fernanda Fortunato (University Hospital St Anna, Ferrara, Italy) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
“Michel Fardeau, a life under the microscope”: testimony from a pioneer in myology
The French Society of Myology (SFM) has published « Michel Fardeau, a life under the microscope », a beautiful book (in French) dedicated to the founding father of myology in France, an internationally recognised pioneer in electron microscopy applied to neuromuscular diseases. An interview with Nicolas Vignier and Stéphane Vassilopoulos. Bringing together testimonials, personal photos and archives … [Read more]
M&M’s – Muscle Monday Seminar – 26 Jan. – Dr Metodi Metodiev (France)
Mitochondrial diseases: pathogenesis and cure 26 January 2026 from noon to 1pm (Paris time) Dr Metodi METODIEV (Institut Imagine, Paris) Invited by Marc Bitoun More information on the speaker and the intervention On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr M&M’s seminar organised by the Center of Research in Myology, at the Institute … [Read more]
Together, Stronger in 2026!
The year 2025 marked a major turning point for our project to create the world’s first foundation dedicated to muscle, the Myology Foundation. This milestone was symbolized by the ceremonial laying of the cornerstone of our future building on June 17th, and by the ten-year commitment of our first pioneering partner, CARAC, a mutual organization specializing in savings, retirement, and provident insurance. … [Read more]
Highlights from the 2025 AcadeMYO Winter School
The Institute of Myology successfully organised the 2025 AcadeMYO Winter School, held entirely online, bringing together an international community to address the major current challenges in myology. This edition, held from 8 to 10 December, welcomed 32 participants from 16 countries — the United Kingdom, Brazil, New Zealand, Lebanon, Spain, Germany, Austria, the Philippines, Portugal, Italy, Russia, Kyrgyzstan, Australia, France and … [Read more]
