Institute events

Myopathology in protein aggregate myopathies and vacuolar myopathies 30th November 2023 – 4pm Paris time Dr. Montserrat Olivé Plana (Hospital Santa Creu i Sant Pau, Barcelona, Spain) Registration: https://zoom.us/webinar/register/WN_Obzcp7k5REazzKB-56n_gQ   Organised by EURO-NMD in collaboration with ERN-RND.

Ceramide de novo synthesis links muscle disorders with mitochondrial and protein homeostasis 20th November 2023, from 12 to 1pm Johan Auwerx, M.D., Ph.D. (Ecole Polytechnique Fédérale de Lausanne, Switzerland) > More information on the presentation and the speaker On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   Organised by the Myology Centre for … [Read more]

The Institut de Myologie hosted the 12th Journée Française Maladie de Pompe on November 9. Under the aegis of the AFM, the Association Francophone des Glycogénoses (AFG) and the Association Vaincre les Maladies Lysosomales, it was organized by the Centre de référence de pathologie Neuromusculaire Nord/Est/Ile de France, the FILNEMUS and G2M rare disease networks, … [Read more]

Pathology of Peripheral Nerves 9 novembre 2023 – 16h heure de Paris Prof. Dr. Joachim Weis (University Hospital RWTH Aachen, Germany) Inscription : https://zoom.us/webinar/register/WN_GJo64JBoRxiF0Fau5sfzhQ   Organisé par EURO-NMD en collaboration avec ERN-RND.

The website for the 8th edition of the international congress dedicated to neuromuscular science MYOLOGY 2024, to be held in Paris from 22 to 25 April 2024, is now open. Abstracts can be submitted on the website until 30 November 2023. Registration is also open at the “early bird” rate until 31 December 2023.   … [Read more]

This year’s “Fête de la Science” will take place from 9 to 16 October in France. Created in 1991, this event is organized every year by the French Ministry of Higher Education and Research, to enable everyone to discover the world of science, and meet the men and women who make today’s science possible. For … [Read more]

The Neuropathies Rehabilitation Summer School, organised under the auspices of the ERN EURO-NMD, took place in Rome from 18 to 21 September 2023. Its main aim was to disseminate knowledge about current and future rehabilitation methods for rare and complex neuropathies. Clinicians and researchers from the Institute have given talks or lectures: Monday 18 September … [Read more]

2022 was a particularly eventful year, with the development of strategic cross-functional projects, the creation of a team to accelerate our digital transformation, the strengthening of our quality tools, and growth in our activities, particularly in adult clinical trials. Finally, a major step was taken in the deployment of our Foundation ambition, with the signing … [Read more]

15 September 2023 marks the third International Myotonic Dystrophy Awareness Day, aimed at highlighting these rare diseases in order to improve diagnosis, care and support, as well as advancing research. The REDs team of the Myology Centre for Research of the Institute of Myology led by Geneviève Gourdon and Denis Furling, which also includes Guillaume … [Read more]

The 2023 edition of the “1000 researchers in schools” operation will run from 6 November to 8 December. During this period, speakers from laboratories supported by the AFM-Téléthon (Institut de Myologie, Généthon and I-Stem) will be visiting secondary schools across France to explain and popularise advances in research and the medical and scientific revolution underway, … [Read more]