Institute events
RSS feed21 September: World Myositis Day
Every year since 2001, 21 September has been World Myositis Day. Myositis is an autoimmune muscle disease that can affect adults and children. It causes weakness, muscle wasting and fatigue, and sometimes affects the skin, heart and lungs. There are different forms of the disease (dermatomyositis, inclusion myositis, etc.), with different mechanisms and symptoms. A … [Read more]
FĂŞte de la Science from 4 to 14 October
Organised every year by the Ministry of Higher Education and Research, the event aims to give everyone the chance to discover the world of science and meet the men and women who make up today’s science. This year’s FĂŞte de la science runs from 4 to 14 October 2024. The AFM-TĂ©lĂ©thon is taking part in … [Read more]
The Fondation Leducq has recently awarded funding to the PRIORITY international network of excellence, coordinated by Dr Gisèle Bonne.
The PRIORITY international network of excellence has just been awarded an $8,000,000 grant from the Fondation Leducq. PRIORITY is a research consortium of 8 partners, 4 from Europe and 4 from North America*, which will work on LMNA gene-related dilated cardiomyopathy (LMNA-DCM). PRIORITY will be coordinated by Dr Gisèle Bonne (Institut de Myologie, France) and … [Read more]
15 September: International Myotonic Dystrophy Awareness Day
15 September is International Myotonic Dystrophy Awareness Day. Its aim is to raise awareness on this neuromuscular disease among the medical profession, politicians and the general public, in order to improve diagnosis, care and support for patients, and also to speed up the development of medicines. This 4th edition will place particular emphasis on two … [Read more]
M&M’s – Muscle Monday Seminar – 19 September – Fabien Le Grand (France) – Postponed
We are sorry to inform you that the seminar has been postponed to a later date. Integrating in silico predictions with an engineered tissue assay identifies re-quiescence cue for muscle stem cells Monday 16 September 2024 – from 12 to 1 pm Fabien Le Grand, PhD (NeuroMyoGène Institute, Lyon, France) Hosted by Capucine … [Read more]
World Duchenne Awareness Day on 7 September
World Duchenne Muscular Dystrophy Day provides an opportunity to note the acceleration in the development of innovative therapies for this neuromuscular disease, which is the most common in children. In particular, gene therapy represents a very promising avenue. GĂ©nĂ©thon, the AFM-TĂ©lĂ©thon laboratory, is currently developing a drug candidate which has demonstrated its efficacy in the … [Read more]
Our 2023 Annual Report is online
In 2023, the Institute continued its dynamic transformation and the deployment of its strategy to support research and innovation. It was also a key year for the emergence of muscle as a public health issue. We all share the same ambition: to support patients throughout their care pathway and to develop strong synergies to bridge … [Read more]


The Danish MuskelsVindfonden association visits the Institute
On Friday 31 August, 56 people from the Danish association MuskelsVindfonden, the Danish equivalent of AFM-TĂ©lĂ©thon, visited the Institute of Myology. They were welcomed by Olivier Stephan and ValĂ©rie Decostre and were able to visit a laboratory. This Danish delegation from the MuskelsVindfonden association, made up of employees and volunteers from the association, was in … [Read more]
ERN EURO-NMD webinar, 3 Sept. : Nawel Lalout (NL) & Dagmar Wandrei (DE)
The ERN EURO-NMD Registry Hub Project Tuesday 3 September 2024 – 16:00 Paris time Nawel Lalout (Radboudumc, NL) & Dagmar Wandrei (Medical Center – University of Freiburg, DE) > + infos Gene Therapy webinar series Organised by EURO-NMD in collaboration with ERN-RND.
ERN EURO-NMD webinar, 23 July : Dr Willeke van Roon-Mom (Netherlands)
Genetic therapies and therapy developments for rare movement disorders Tuesday 23 July 2024 – 15:00 – 16:00 Paris Time Dr. Willeke van Roon-Mom (LUMC, The Netherlands) > + infos Gene Therapy webinar series Organised by EURO-NMD in collaboration with ERN-RND.
