Institute events

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Fiorella Grandi, winner of the prestigious Marie Sklodowska-Curie 2022 postdoctoral fellowship – Interview with F. Grandi and P. Smeriglio

Fiorella Grandi started a postdoctoral fellowship in October 2022 in the Epigenetics and biotherapies for motor neuron disorders (ALS & SMA) group led by Piera Smeriglio. She is a laureate of the MSCA Postdoctoral Fellowships 2022 call (Marie Skłodowska-Curie Actions – Horizon Europe). Her project* focuses on the epigenetic mechanisms** that influence the efficacy of … [Read more]

The European Reference Network (ERN) EURO-NMD is looking for a Project Assistant (M/F)

ERN EURO-NMD European Reference Networks (ERNs) are networks involving centers of expertise and health care providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialized treatment, as well as a concentration of knowledge and resources. Established in 2017 and co-funded by the European Commission, EURO-NMD is a European … [Read more]

A look back at the 27th SFNP meeting

The 27th meeting of the Société Francophone du Nerf Périphérique (SFNP) took place on 10 & 11 March 2023 in Paris Bercy in the salons of the Aveyron. They are organised this year in collaboration with the Société Francophone d’Electroneuromyographie (SFENMG). The days are intended for health professionals, clinicians and researchers on transversal themes from … [Read more]

M&M’s – Muscle Monday Seminar – 13 March – Eric T. Wang (USA)

Repeat Expansions Instigate Supply Chain Issues in Nucleus and Cytoplasm 13th March 2023 – 12:00 – 13:00 Eric T. Wang (Dept of Molecular Genetics & Microbioloy, University of Florida, USA) On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr > More information on the presentation and the speaker   M&M’s – Muscle Monday Seminars … [Read more]

ERN EURO-NMD webinar, Mar. 9th – Dr. Federica Montagnese (Germany)

Muscle hyperexcitability and cramps 9th March 2023 – 4pm Paris time Dr. Federica Montagnese (Friedrich-Baur Institute, Department of Neurology, Ludwig-Maximilian University Munich, Germany) Registration : https://zoom.us/webinar/register/WN_2liSVqV-TRKsJIbvCsm8uw   Organised by EURO-NMD in collaboration with ERN-RND

ERN EURO-NMD webinar, Feb. 16th – Stéphane Vassilopoulos (France)

Caveolae and Bin1 form ring-shaped platforms for T-tubule initiation 16 February 2023 – 16:00 Paris time Stéphane Vassilopoulos (Myology Centre for Research, Institute of Myology, France) Inscription : https://zoom.us/webinar/register/WN_CyiBCczsR62CeUudv278SA   Organised by EURO-NMD in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.

Muscle, a major public health issue

Because muscles are a major public health issue, AFM-Telethon and the Institute of Myology, an international center of expertise on muscles and their diseases, are carrying out a project for a Myology Foundation. In addition, to raise awareness on myology among the public, they are launching two events dedicated to this public health issue in … [Read more]

« Muscle is a real public health issue and should be recognised as such » – Interview with Laurence Tiennot-Herment

Interview with Laurence Tiennot-Herment, President of AFM-Telethon and Institute of Myology Association.  Why is muscle a public health issue? As patients with neuromuscular diseases know all too well, muscles play a vital role in motor, respiratory and cardiac functions. But they are also affected in many other diseases such as cancer or diabetes. In other words, … [Read more]

Institute seminar – Jan 26th – 3pm: Stefan Winblad, PhD. (Sweden)

Cognitive impairments in neuromuscular disorders Thursday, 26 January 2023 – 3pm-4pm Stefan Winblad (University of Gothenburg, Sweden)   Amphitheatre C (Ground Floor) 91 Boulevard de l’Hôpital 75013 Paris Hosts : Nathalie Angeard (AIM) and Mario Gomes-Pereira (CRM)

ERN EURO-NMD webinar, January 26th – Prof. Kristl Claeys (Belgium)

Proximal Weakness 26 January 2023 – 16:00 Paris time Pr Kristl Claeys  (University Hospitals Leuven, Belgium) Inscription : https://zoom.us/webinar/register/WN_4pKJp8MYRTGiCJKp4K4x1w   Organised by EURO-NMD in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.