Institute events

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Introduction to research in myology at the Institute for SU medical students – Interview with Guillaume Bassez

The Institute welcomed its first class of medical students for an introduction to research in the field of myology in April 2023. This week of training, which is part of the medical curriculum at Sorbonne University, was organised by Guillaume Bassez, neurologist and head of a research group in the Repeat Expansions & Myotonic Dystrophy … [Read more]

The Institute of Myology is proud to be a partner of the Genother Biocluster

Genother is a biocluster dedicated to accelerating the development of gene therapy drugs. It is one of the five winners of the “Biocluster” call for expressions of interest under the France 2030 Plan, as announced today by the French President, Emmanuel Macron. This labeling will strengthen France’s leadership in the field of gene therapy, largely … [Read more]

Institute seminar – 24 May – Dr Carsten Bönnemann, MD (USA)

Childhood ALS and the Missing 6th Sense: Novel SPT and PIEZO2 associated Syndromes Wednesday 24 May – 11:00-12:00 Carsten G. Bönnemann, MD (NINDS, NIH, USA)   Institute of Myology amphitheatre Babinski building 47/83 Boulevard Vincent Auriol 75013 Paris métro : Chevaleret Host : Valérie Allamand (CRM)

Role of caveolae in T-tubule formation in the muscle cell – Interview with Eline Lemerle and Stéphane Vassilopoulos

Eline Lemerle completed her thesis* under the supervision of Stéphane Vassilopoulos, in Marc Bitoun’s team (Muscle Organization & Therapy of Dominant Centronuclear Myopathy) at the Institute’s Myology Centre for Research. Her work on the formation of T-tubules in the muscle cell and more specifically on the role of caveolae, has just been published in the … [Read more]

18th meeting of the East Parisian MNM Reference Centre: PMA and parenthood – 23 June

The Reference Centre for Neuromuscular Diseases of Eastern Paris is organising its 18th meeting on the theme: Medically Assisted Reproduction and Parenthood – Clinical, Legal and Cultural Aspects. The meeting will take place on Friday 23 June 2023 – 9:00 am – 4:30 pm in the amphitheatre of the Institute of Myology. This event is … [Read more]

M&M’s – Muscle Monday Seminar – 22 May – Michael Snyder (USA)

Transforming Healthcare Using Deep Data and Wearables May 22nd, 2023 – 16:00 – 17:00 Michael Snyder (USA, Stanford Medicine – Stanford University Chair, Dept. of Genetics (2009 – Present) ; Director, Center for Genomics and Personalized Medicine (2009 – Present)) On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr > More information on the presentation … [Read more]

ERN EURO-NMD webinar, 4th May – Dr Ulrike Schara-Schmidt (Germany)

Floppy child 4th May 2023 at 16:00 Paris Time Dr Ulrike Schara-Schmidt (University Clinics Essen, Essen, Germany) Registration: https://zoom.us/webinar/register/WN_pY17Imm6S8-dAcL9JSXwQQ   Organised by EURO-NMD in collaboration with ERN-RND.

ERN EURO-NMD webinar, 27th Apr. – Dr. Nicole B.M. Voet (The Netherlands)

Fatigue in Neuromuscular Disorders 27th April 2023 at 16:00 Paris Time Dr. Nicole B.M. Voet (Radboud University Medical Center, the Netherlands) Registration: https://zoom.us/webinar/register/WN_CsaIEW5SQxyBoNKC5sYwbA   Organised by EURO-NMD in collaboration with ERN-RND.

M&M’s – Muscle Monday Seminar – 17 April – Prof. Pamela Shaw (UK)

Motor neuron disease: a neurodegenerative disorder poised for successful therapy development April 17th, 2023 – 12:00 – 13:00 Professor Dame Pamela Shaw (Professor of Neurology, Honorary Consultant Neurologist, Sheffield Teaching Hospitals NHS Foundation Trust, Director of the Sheffield Institute for Translational Neuroscience (SITraN), Director NIHR Sheffield Biomedical Research Centre, Director of the cross-faculty Neuroscience Research Institute … [Read more]

ERN EURO-NMD webinar, Apr. 6th – Prof. Werner Stenzel (Germany)

Inflammatory Myopathies 6th April 2023 – 4pmParis Time Prof. Werner Stenzel (Charité – Universitätsmedizin Berlin, Germany) Registration: https://zoom.us/webinar/register/WN_sdHfvA2tSei3Nx_MvL-_qQ   Organised by EURO-NMD in collaboration with ERN-RND