Institute events
RSS feedDREAMS webinar, 28 Feb.: A. Mejat (France), E. Malfatti (France), G. Perret (France)
Clinical Trials in Focus: Innovations and Patient Perspectives in Rare Diseases Friday 28 February 2025 – 12:00 PM – 1:30 PM (CET) Alexandre Mejat (AFM-Téléthon) • The Need for Innovation in Clinical Trial Methodologies for Muscular Disorders Edoardo Malfatti (AP-HP) • Overview of Outcome Mesures in Neuromuscular Disorder Clinical Trials Gérald Perret (Généthon) • Lessons … [Read more]
ERN EURO-NMD webinar, 20 Feb.: Prof. Peter Van den Bergh (Belgium)
Electrodiagnostic patterns in immune-mediated neuropathies Thursday 20 February 2025 – 16:00 – 17:00 Paris time Prof. Peter Van den Bergh (Cliniques universitaires Saint-Luc, Brussels, Belgium) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
ERN EURO-NMD webinar, 13 Feb.: Prof. Thomas Harbo (Denmark) & Dr. Emilien Delmont (France)
Multifocal motor neuropathy (MMN): diagnosis, treatment and update on biomarkers Thursday 13 February 2025 – 16:00 – 17:00 Paris time Prof. Thomas Harbo (Aarhus University, Denmark) & Dr. Emilien Delmont (AP-HM Hôpital de la Timone, Marseille, France) > + info Organized by EURO-NMD in collaboration with ERN-RND.
M&M’s – Muscle Monday Seminar – 10 Feb. – Corinne Albiges Rizo (France)
Signaling intertwining and receptor partitioning between integrins and BMP2 receptors to govern cell migratory strategies Monday 10 February 2025 – from 12 to 1pm Corinne Albiges Rizo (Institut Albert Bonniot, Grenoble, France) Hosted by Catherine Coirault More information on the presentation and the speaker On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr … [Read more]
M&M’s – Muscle Monday Seminar – 27 Jan. – V. Romanello (Italy)
Metabolic Organelles and Their Role in Muscle Mass Maintenance Monday 27 January 2025 – from 12 to 1pm Vanina Romanello (University of Padova, Italy) Hosted by Capucine Trollet More information on the presentation and the speaker On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr M&M’s seminar organised by the Center of … [Read more]
2025, Empowering muscle, fostering hope and health for all!
Dear patients and families, Dear donors, Dear partners, All the teams and staff at the Institute of Myology wish you happiness, success and health in 2025. We would like to extend our warmest thanks to our generous donors who supported us in 2024, a year filled with a rich variety of events and structuring … [Read more]
ERN EURO-NMD, 9 Jan.: Dr. Teresinha Evangelista (France)
The role of biopsy in Autophagic Myopathies Thursday 09 January 2025 – 16:00 – 17:00 Paris time Dr. Teresinha Evangelista (Institute of Myology & Pitié Salpêtrière Hospital – AP-HP, Paris, France) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
Report on the ‘1,000 researchers in schools’ operation
The 12th edition of the ‘1,000 researchers in schools’ operation has just come to an end. This year it ran from 4 November to 6 December. Nearly 1,500 events took place in 539 schools, introducing more than 60,000 pupils from 427 towns and cities to medical research. For the Institute, 36 experts took part in … [Read more]
ERN EURO-NMD webinar, 19 Dec. : Prof. Edoardo Malfatti (France)
Novel approaches and future developments in Neuromuscular Pathology Thursday 19 December 2024 – 16:00 – 17:00 Paris time Prof. Edoardo Malfatti (Paris-Est AP-HP, France) > + infos Organized by EURO-NMD in collaboration with ERN-RND.
Tribute to Michel Fardeau, pioneer of myology
Michel Fardeau passed away on 6 December at the age of 95. A medical researcher, he began his career as a Clinic Director at Paris Hospitals before working at the end of the 1960s at the National Institutes for Health (NIH) in Bethesda, in the United States, with his American counterpart King W Engel, with … [Read more]
