Institute events

For more than 27 years, AFM has been able to initiate an innovative research policy and provide assistance to patients through donations of the Telethon. 27 years of fighting and actions for neuromuscular diseases through a strategy of general interest has resulted in significant advances for the treatment of all rare genetic diseases and even … [Read more]

A collaboration involving three laboratories supported by the AFM-Telethon, Atlantic Gene Therapies (AFM-Telethon, Inserm UMR 1089, Université de Nantes,Nantes University Hospital), Généthon (Evry) and the Institute of Myology (Paris), demonstrated the effectiveness of an innovative gene therapy treatment in the canine model of Duchenne muscular dystrophy. This work, published in the journal Molecular Therapy in … [Read more]

The AFM-Telethon, France Télévisions and Garou, sponsor of Telethon 2014 invited everyone on december 5th and 6th, on France Télévisions channels and throughout France, for a spectacular new edition! 4 families to embody “The struggle of parents, children’s lives” Delphine Olivier, Beatrice, Fabrice, Sandrine, Eric, Naziha are parents of children with a rare disease. Whether … [Read more]

After Lille in 2011, AFM-Telethon is organizing its Fifth International Congress of Myology in Lyon, from 14th till 18th March 2016 Held for the first time in 2000, MYOLOGY has become a unique opportunity for international experts in the field to exchange and confront the emerging therapeutic approaches, but also to share the first clinical … [Read more]

As part of its strategic plan AFM 2017, the AFM-Telethon wanted to create a centre for clinical research and support for children in order to facilitate the implementation of clinical trials in young patients with neuromuscular diseases. Last November, the I-Motion project was launched at the Trousseau Hospital in Paris. At this clinical research and … [Read more]

The 17th Summer School of the Institute of Myology was held from June 10 to 18. This edition hosted 51 students from 23 countries: USA, Canada, Mexico, Brazil, Argentina, France, England, Portugal, Italy, Russia, China, Switzerland, Belgium, Burkina-Faso, Romania, Iran, Spain, The Netherlands , Denmark, and 4 new countries, Kazakhstan, Pakistan, Sri Lanka and Norway. … [Read more]

Thank you ! A huge thank you to all the volunteers who have joined forces everywhere in France, all the donors whose supports and give us fantastic and numerous expressions of encouragement during all those 30 hours. This new edition show us how Téléthon is a social link,  a fantastic solidarity, a sort of confidence … [Read more]

Five families, all affected by muscle diseases, will be the ambassadors of thousands, all gathered around the message: “The Fight of Parents, The Life of Children.”   On December 6th and 7th, together with Patrick Bruel, the official ambassador of Telethon 2013, five families will represent the fight of the AFM-Telethon. Sandrine, Luke, Vanessa, Emmanuelle … [Read more]

During 10 days each year, The Institute of Myology organises the Summer School of Myology to allow research doctors from abroad and the French overseas territories to follow a condense program of Myology courses. The XVIth sixteenth Summer School welcomed 58 students, the largest number so far. No less than 29 different nationalities were represented … [Read more]

The final amount donated largely exceeds the pledges recorded at the end of the broadcast. A remarkable result as the AFM-Telethon prepares to meet new challenges for 2013.The final amount donated to Telethon 2012 attained 88,156,400 euros. This outstanding result exceeds by 7 million euros, the pledges made at the end of 30 hours of … [Read more]