Institute events

Dominique Duchêne, Project Manager, Clinical Research Associate (CRA) Manager at I-Motion, the paediatric clinical trial platform.

 If I could ask you who you are and what your mission is, and how long you have been working at the Institute? I joined the Institute of Myology in 2011 and I am currently Project Manager at I-Motion. … [Read more]

Interview with Isabelle Coupa, Nursing Manager at the Institute of Myology’s Service of Neuro-Myology. If I could ask you who you are and what your mission is? I am Isabelle Coupa, Nursing Manager at the Institute of Myology’s Service of Neuro-Myology. I hold a University Degree in Nursing and I have worked for a number … [Read more]

The Institute of Myology teams fully mobilised!   Welcome to our 79th newsletter.   After these last weeks of confinement, Dr. Vincent Varlet, Secretary General of the Institute of Myology, and Pr. Bertrand Fontaine, Medical and Scientific Director of the Institute of Myology, Head of the service of Neuro-Myology and Director of the Myology Centre … [Read more]

An immunomodulatory biotherapy, efgartigimod is a fragment of antibodies directed against the neonatal Fc or FcRn receptors. These receptors prevent the breakdown of immunoglobulins G (IgG), which include the autoantibodies produced in myasthenia gravis. By binding to FcRn, efgartigimod (or ARGX-113) reduces the recycling of IgG and therefore their circulating rate. Administered as an infusion … [Read more]

Interview with Kubéraka Mariampillai, Project Manager for the Adult Clinical Trials platform at the Institute of Myology, headed by Prof. Bertrand Fontaine and coordinated by Dr Giorgia Querin, and member of “Inflammatory Myopathies and Innovative Targeted Therapies” team 8 at the Research Centre, headed by Prof. Olivier Benveniste. If you could tell me who you … [Read more]

Interview with Prof. Marcela Gargiulo, psychologist and leader of the team of psychologists at the Service of Neuro-Myology, headed by Prof. Bertrand Fontaine. If I could ask you who you are and what your mission is? I am a clinical psychologist and I have been working at the Institute of Myology since it was created … [Read more]

Located in Paris at the heart of the largest European hospital, Pitié-Salpêtrière, the Institute of Myology was created in 1996 by AFM-Telethon, a patient’s organization. The Institute of Myology coordinates, around the patient, medical care, basic research, applied research, clinical research and teaching. The main objective of the post is to promote and provide helpdesk … [Read more]

The team at the Neuromuscular Physiology and Evaluation Laboratory of the Institute of Myology participated with, in particular, clinicians from I-Motion, in a study intended to assess grip strength in patients with Duchenne Muscular Dystrophy. The results were published in March 2020, in the Journal of Neurology*. Interview with Jean-Yves Hogrel, Head of the Laboratory. … [Read more]

Interview with Prof. Olivier Benveniste, Director of research Team 8, “Inflammatory myopathies and innovative targeted therapies“, at the Institute’s Centre for Myology Research, University Professor – Hospital Practitioner at the Department of Internal Medicine and Clinical Immunology (the DMIIC) at the Pitié-Salpêtrière Hospital, Coordinator for the French National Myositis Network. If you could provide some … [Read more]

Interview with Guillaume Bassez, research professor and neurologist at the Institute of Myology’s Service of Neuro-Myology. What measures have been put in place at the Service of Neuromyology to respond to the COVID-19 health crisis? Our service comprises 10 doctors: neurologists, rehabilitation doctors, psychologists and two interns. We usually handle 4200 consultations per year and … [Read more]