Institute events

Management of HyperCKemia Thursday 16 October 2025 – 16:00 – 17:00 Paris time Prof. Antonio Toscano (University of Messina, Italy) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.  

The 11th Limb Girdle Muscular Dystrophy Awareness Day takes place on 30 September. Organised by the LGMD Awareness Foundation, the aim of this day is to draw attention each year to this group of rare neuromuscular diseases that have an impact on the lives of many people, children and adults alike, in every region of … [Read more]

AAV.U7snRNA as a platform to treat neuromuscular disorders 22 September – from 12 to 1pm (Paris time) Dr Nicolas WEIN (Nantes, France) More information on the presentation and the speaker On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   M&M’s seminar organised by the Center of Research in Myology, at the Institute … [Read more]

Every year since 2001, 21 September has been World Myositis Day. Myositis is an autoimmune muscle disease that can affect adults and children. It causes weakness, muscle wasting and fatigue, and sometimes affects the skin, heart and lungs. There are different forms of the disease (dermatomyositis, inclusion myositis, etc.), with different mechanisms and symptoms. A … [Read more]

Join us for this unique opportunity to perfect your skills in myology, an increasingly exciting discipline dedicated to neuromuscular science! All professionals manifesting some interest in the field are encouraged to apply. Be prompt in doing so as the maximal gauge has been set to 200 participants this year.   Access the tentative programme   … [Read more]

This year’s World Duchenne Awareness Day theme is ‘Family: At the Heart of Care’. A documentary is available on this theme, following families from around the world who are living with Duchenne muscular dystrophy.   Research into Duchenne muscular dystrophy is gathering pace This day is an opportunity to highlight the accelerated development of innovative … [Read more]

REGISTRATION Free access, in person, upon prior registration (no video conferencing)   As part of its reflections on Science, ethics and innovation in the field of life, the Institute of Myology is hosting a lecture in French:   EXPERIMENTAL MODELS IN RESEARCH: ADVANCES AND ETHICAL ISSUES   by Athanassia Sotiropoulos Senior researcher, Head of GIS-FC3R … [Read more]

The DIU (Inter-University Diploma, a post-graduate diploma) in Myology, which brings together Sorbonne University and the University of Aix-Marseille-II, aims to provide students with a coherent, structured and modern vision of Myology in its anatomical-physiological foundations, its clinical practice, its complementary explorations and its developments in terms of research. Delivered in French, this course is … [Read more]

The annual Journées des Familles event organised by the AFM-Téléthon at the Parc Floral near Paris was held on 4 and 5 July. Nearly 1,700 families, volunteers, members, researchers and professionals attended. It was a great opportunity for everyone to meet up, get informed and exchange ideas in a festive atmosphere. The programme included meetings … [Read more]