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World Myositis Day: 21 September

Every year since 2001, 21 September has been World Myositis Day. Myositis is an autoimmune muscle disease that can affect adults and children. It causes weakness, muscle wasting and fatigue, and sometimes affects the skin, heart and lungs. There are different forms of the disease (dermatomyositis, inclusion myositis, etc.), with different mechanisms and symptoms. A … [Read more]

International Myotonic Dystrophy Awareness Day

International Myotonic Dystrophy Awareness Day takes place every year on 15 September. It aims to raise awareness on this neuromuscular disease among the medical profession, politicians and the general public, in order to improve diagnosis, care and support for patients, and also to speed up the development of medicines. This 5th edition will place particular … [Read more]

AcadeMYO Winter School:  8-10 December 2025 online

Join us for this unique opportunity to perfect your skills in myology, an increasingly exciting discipline dedicated to neuromuscular science! All professionals manifesting some interest in the field are encouraged to apply. Be prompt in doing so as the maximal gauge has been set to 200 participants this year.   Access the tentative programme   … [Read more]

7 September: World Duchenne Awareness Day

This year’s World Duchenne Awareness Day theme is ‘Family: At the Heart of Care’. A documentary is available on this theme, following families from around the world who are living with Duchenne muscular dystrophy.   Research into Duchenne muscular dystrophy is gathering pace This day is an opportunity to highlight the accelerated development of innovative … [Read more]

Lecture: Experimental models in research, advances and ethical issues

REGISTRATION Free access, in person, upon prior registration (no video conferencing)   As part of its reflections on Science, ethics and innovation in the field of life, the Institute of Myology is hosting a lecture in French:   EXPERIMENTAL MODELS IN RESEARCH: ADVANCES AND ETHICAL ISSUES   by Athanassia Sotiropoulos Senior researcher, Head of GIS-FC3R … [Read more]

DIU in Myology 2025-2026 session: applications are now open

The DIU (Inter-University Diploma, a post-graduate diploma) in Myology, which brings together Sorbonne University and the University of Aix-Marseille-II, aims to provide students with a coherent, structured and modern vision of Myology in its anatomical-physiological foundations, its clinical practice, its complementary explorations and its developments in terms of research. Delivered in French, this course is … [Read more]

A look back at JDF 2025, a meeting place for patients, families, experts and volunteers

The annual Journées des Familles event organised by the AFM-Téléthon at the Parc Floral near Paris was held on 4 and 5 July. Nearly 1,700 families, volunteers, members, researchers and professionals attended. It was a great opportunity for everyone to meet up, get informed and exchange ideas in a festive atmosphere. The programme included meetings … [Read more]

M&M’s – Muscle Monday Seminar – 7 July – Cedric Moro (France)

Skeletal muscle as an endocrine organ during exercise Monday 7 July – 12h00-13h00 Cedric Moro, PhD (Institute of Metabolic and Cardiovascular Diseases, Toulouse, France) More information on the presentation and the speaker On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   M&M’s seminar organised by the Center of Research in Myology, at … [Read more]

A look back at the 26th AcadeMYO summer school

The 26th edition of the Institute of Myology’s summer school has just come to an end. It was held face-to-face at the Institute of Myology from 16 to 20 June. Every year, the Institute organises a 5-day summer school (AcadeMYO) to enable French and foreign professionals (18 countries* represented this year) to follow a condensed … [Read more]

M&M’s – Muscle Monday Seminar – 30 June – Kay Ohlendieck (Ireland)

Proteomic profiling of skeletal muscle aging Monday 30 June 2025 – 12h00-13h00 Pr Kay Ohlendieck (Maynooth University Faculty of Science & Engineering, Ireland) More information on the presentation and the speaker On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   M&M’s seminar organised by the Center of Research in Myology, at the … [Read more]