Institute events

Mitochondrial diseases: pathogenesis and cure 26 January 2026 from noon to 1pm (Paris time) Dr Metodi METODIEV (Institut Imagine, Paris) Invited by Marc Bitoun More information on the speaker and the intervention   On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   M&M’s seminar organised by the Center of Research in Myology, at the Institute … [Read more]

The year 2025 marked a major turning point for our project to create the world’s first foundation dedicated to muscle, the Myology Foundation. This milestone was symbolized by the ceremonial laying of the cornerstone of our future building on June 17th, and by the ten-year commitment of our first pioneering partner, CARAC, a mutual organization specializing in savings, retirement, and provident insurance. … [Read more]

The Institute of Myology successfully organised the 2025 AcadeMYO Winter School, held entirely online, bringing together an international community to address the major current challenges in myology. This edition, held from 8 to 10 December, welcomed 32 participants from 16 countries — the United Kingdom, Brazil, New Zealand, Lebanon, Spain, Germany, Austria, the Philippines, Portugal, Italy, Russia, Kyrgyzstan, Australia, France and … [Read more]

Maxime Jacoupy, Director of Data at the Institute of Myology, oversees the MyoData platform. With a PhD in neuroscience and a master’s degree in artificial intelligence, he embodies dual expertise at the interface of biomedical sciences and digital technologies. His mission: to structure, ensure the reliability of, and make usable the data produced at all … [Read more]

Update on Diagnostic Imaging in Neuromuscular Diseases Thursday 18 December 2025 – 16:00-17:00 Paris time Prof. Giorgio Tasca (John Walton Muscular Dystrophy Research Centre, Newcastle University, UK) & Harmen Reyngoudt, PhD (Institute of Myology, Paris, France) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

Fast subtype myofiber specialization: motoneuron-myofiber crosstalk 15 December 2025 from noon to 1pm (Paris time) Dr Pascal MAIRE (Institut Cochin. INSERM U1016, CNRS UMR 8104, U.Paris Cité. Physiopathology of the neuromuscular system) Invited by Capucine Trollet and Denis Furling   The seminar will be hybrid in AMPHI Charcot (Pitié Salpêtrière) and on zoom   On … [Read more]

Mental health in Neuromuscular Disorders Thursday 11 December 2025 – 16:00-17:00 Paris time Dr. Tonje Elgsås (Frambu Resource center for rare diseases, Norway) & Arabela Acălinei (European Alliance of Neuromuscular Disorders Associations (EAMDA) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

Management of Fatigue in Myopathies Wednesday 10 December 2025 – 16:00-17:00 Paris time Prof. Michelangelo Mancuso (Azienda Ospedaliera University of Pisa, Italy) > + infos   Organized by EURO-NMD in collaboration with ERN-RND.

Timing Matters: how the macrophage Clock regulates Skeletal Muscle Regeneration 8 December 2025 from noon to 1pm (Paris time) Dr Yasmine SEBTI (Institut Pasteur de Lille, France) Invited by Capucine Trollet   The seminar will be 100% virtual on zoom   On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr   M&M’s seminar organised … [Read more]

Update on Congenital Myasthenic Syndromes Thursday 04 December 2025 – 16:00 – 17:00 Paris time  Prof. Hanns Lochmüller (University of Ottawa, Canada) > + infos   Organized by EURO-NMD in collaboration with ERN-RND