An article on primary mitochondrial myopathies has been published by the Mitochondrial Medicines Society (MMS) and the United Mitochondrial Disease Foundation (UMDF):
- it highlights and provides information on the challenges faced by people with this disease: visible and stigmatising symptoms that worsen, reduced autonomy, social isolation, lack of treatment, etc.
- it encourages professionals and patients to get in touch with expert networks of their peers in order to limit the impact of these diseases on quality of life as much as possible.
