American cardio-paediatricians gathered within the ACTION network (Advanced Cardiac Therapies Improving Outcomes Network) were questioned about their management practices concerning DMD:
- 31 specialists from 23 separate institutions agreed to participate in the survey;
- while access to cardiac MRI and Holter monitoring is uniformly possible across the United States, their frequency and indications vary significantly from one practitioner to another;
- the same is true for prescriptions of ACE inhibitors or beta-blockers;
- the use of more sophisticated approaches such as implantable defibrillators and/or external ventricular assistance is still poorly codified.