Variety of practices in the cardiac management of patients with DMD

American cardio-paediatricians gathered within the ACTION network (Advanced Cardiac Therapies Improving Outcomes Network) were questioned about their management practices concerning DMD:

  • 31 specialists from 23 separate institutions agreed to participate in the survey;
  • while access to cardiac MRI and Holter monitoring is uniformly possible across the United States, their frequency and indications vary significantly from one practitioner to another;
  • the same is true for prescriptions of ACE inhibitors or beta-blockers;
  • the use of more sophisticated approaches such as implantable defibrillators and/or external ventricular assistance is still poorly codified.


Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION. Villa C, Auerbach SR, Bansal N, et al. Pediatr Cardiol. 2022 Jan 13:1–9.