A European position statement on the role of rehabilitation physicians in the care of patients with muscular dystrophy

The Physical Medicine and Rehabilitation specialist (PMR) plays a key role in the management of patients with muscular dystrophy. Based on an exhaustive analysis of the medical literature and an approach using the Delphi method, the PMR section of the European Union of Medical Specialists issued an opinion comprising 33 recommendations for best practice. These concern, among others: 

  • the pluri and transdisciplinarity of the approach to the patient with myopathy; 
  • the child-adult transition;
  • the prescription of interventions with a palliative or therapeutic aim, which must be, as far as possible, supported by scientific evidence;
  • the use of functional scales, specific or not, but validated.

 

Evidence based position paper on Physical and Rehabilitation Medicine practice for people with muscular dystrophies. Lazovic M, Nikolic D, Boyer FC, et al. Eur J Phys Rehabil Med. 2021 Dec;57(6):1036-1044.