This study employed the Utrecht Scale of Evaluation Rehabilitation-Participation (USER-P) with Frequency, Restrictions and Satisfaction scores to evaluate social participation in 62 adults with spinal muscular atrophy (SMA) types 1c-4. The results showed that early (type 1,2,3a) and late onset (type 3b,4) SMA patients reported similar frequency and satisfaction scores. ‘Age’, ‘motor skills’, ‘pain’ and ‘feelings of depression’ correlated with frequency; ‘motor skills’ and ‘feelings of depression’ correlated with restrictions and ‘level of education’, ‘fatigue’ and ‘feelings of depression’ correlated with satisfaction. Motor skills and feelings of depression explained 33% of variance in frequency of participation. Motor skills explained 26% of variance of restrictions in participation. Fatigue and feelings of depression explained 50% of variance in satisfaction with participation.
