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Prize4Life Announces ALS Treatment Prize Winner

Prize4Life, a nonprofit organization whose mission is to accelerate the discovery of treatments and a cure for ALS (Amyotrophic Lateral Sclerosis, also known as Lou Gehrig’s disease), today announced the winner of its $1M Avi Kremer ALS Treatment Prize. The winners are the team of Drs. Martine Barkats and Maria-Grazia Biferi, from the Institute of … [Read more]

EVELAM: the result of a fruitful collaboration between myology experts from Latin America and Europe that will benefit myology at the international level

Interview with one of its founders, Dr. Jorge Bevilacqua Jorge Bevilacqua is an Argentinean physician and researcher who has been practicing for 20 years in Santiago de Chile at the Hospital Clinico Universidad de Chile. His involvement with the Institute of Myology is very old: he studied at the Institute of Myology’s Summer School in … [Read more]

Spinraza drug authorization: Patients’ organization AFM-Telethon welcomes a major step but calls upon full transparency by Biogen regarding the price claimed

On December 23rd 2016, the US Food and Drug Administration (FDA) issued Biogen with an authorization for Spinraza (Nusinersen). The drug is approved for use for all American patients affected with spinal muscular atrophy (SMA), regardless of disease type. AFM-Telethon welcomes this landmark development which opens the way for treating an incurable, devastating and extremely … [Read more]

Optimizing therapeutic approach to cure Duchenne Muscular Dystrophy

Team 5 from institute’s Myology Center for Research “RNA-repair based therapeutics & skeletal muscle pathophysiology” is directed by France Pietri-Rouxel. Focused on Duchenne muscular dystrophy, it is involved in translational research: from basic research to clinical trials. Within the team, four thematic groups, which include engineers, technical staff and students, are led by four researchers. … [Read more]

Glycogenoses: information and meeting days for families

Organised during the general assembly of the Association Francophone des Glycogénoses (French Association for Glycogenoses, AFG) families and research stakeholders involved in glycogenoses were brought together over two days. Meetings with families (Rencontres des familles), organised by the AFG on October 22 and 23 in Lyon, allowed researchers, medical teams, reference centres for rare diseases … [Read more]

Generation Telethon at the Institute of Myology

Hospital staff, patients and their families, student visitors, all played the game and let themselves be photographed, dressed in the t-shirt of the year “Generation Telethon”, by the team of the Institute of Myology which realized wild shooting in the margins of the demonstrations. With the breakfast, the sandwich and / or the book, the … [Read more]

“This 30th Telethon launches a generation of finders!”

The 30th Telethon counter displayed €80,319,113 after the 30-hour TV program. But the rallying doesn’t stop now. All week, the 3637 phone line and the telethon.fr website are still open for this great generosity to get bigger, a generosity which has the face of hundreds of thousands of donors and volunteers. This edition marks the … [Read more]

Garou at the Institute of Myology

Garou was welcomed by the researchers of the Institute of Myology during a visit of the laboratories with the ambassador families of Telethon 2016. On 1st of December, Garou, the mentor of Téléthon 2016, came to the Institute of Myology. Accompanied by Laurence Tiennot-Herment, President of the AFM-Téléthon, and the four ambassador families, the Quebec … [Read more]

Institute seminar – 5 December – Dr. Yang Liu (UK)

Influence of Inflammation to the Development of Heterotopic Ossification Following Blast Injury and Amputation

 Dr. Yang Liu (Wolfson School of Mechanical, Electrical and Manufacturing Engineering, Loughborough University, UK) Monday 5 December 2016 – 12h00-13h00 Host : 12:00-13:00 Institute of Myology auditorium Hôpital de la Pitié-Salpêtrière Building Babinski Entrance 82 bd Vincent Auriol metro Chevaleret

Release of the latest newsletter from the Institute

Welcome in the 59th édition of our newsletter! The AFM-Telethon and the ‘Sociétés de Projets Industriels’ SPI (Industrial Projects Companies) investment fund are creating YposKesi, the first French company to develop and produce gene and cell therapy products for rare diseases. This new company aims to make the first treatments available to patients and market … [Read more]