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Telethon 2020: 58 290 120 euros!

At the end of the television broadcast, the counter of the 2020 Telethon shows 58 290 120 euros. Despite the health crisis, which led to the cancellation of a very large number of events in towns and villages, the French people responded positively to this extraordinary Telethon: the one presenting the greatest victories of its … [Read more]

ERN EURO-NMD webinar, 10th December: Isabel Leite (UK)

Webinar organised by EURO-NMD in collaboration with ERN-RND and EAN Thursday 10th December 2020 – 4:00 am (Paris time)   Challenges in the diagnosis and management of patients with myasthenia gravis   Isabel Leite (Senior Researcher and Honorary Clinical Neurologist from the Nuffield Dept of Clinical Neurosciences Oxford University, UK)   Inscription : https://aim.zoom.us/webinar/register/WN_CUlyQGJCQL6nU6nBr4ikQA

Release of the 82nd newsletter from the Institute

The teams of the Institute of Myology fully committed and organized despite the crisis   Regarding this second period in the health crisis we are going through and strengthened by the measures provided in the first period, our teams have been able to adapt and know how to work in an epidemic situation. Some of our … [Read more]

M&M’s – Muscle Monday Seminar – 7 Dec – Prof. Elizabeth Chen (USA)

Mechanical Tension Drives Cell-Cell Fusion Monday 7 December 2020 – 4pm-5pm
 Pr Elizabeth Chen (University of Texas Southwestern Medical Center, USA) Hosted by Catherine Coirault et Bruno Cadot On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr > Further details on the seminar of Prof. Elizabeth Chen

Operation ‘1000 researchers at schools’ is ongoing

The operation ‘1000 researchers in schools in France and abroad’ intended to bring together researchers and middle school students to share a moment and discover the reality of research. Many establishments signed up for an intervention. About fifty researchers from the Institute of Myology took part in this operation in 65 establishments (middle and high … [Read more]

A researcher visiting schools – Interview with Nadine Dragin


Nadine Dragin is among the first scientific experts to be going out to meet high school students for the 2020 edition of Operation 1000 researchers at schools based in France and abroad. Despite the current health situation and the constraints that it imposes, she did not hesitate to go out and meet a few dozen … [Read more]

Innovation for the non-invasive assessment of the diaphragm – Interview with T. Poulard and D. Bachasson

Thomas Poulard* and Damien Bachasson** from the Neuromuscular Physiology and Evaluation Laboratory headed by Jean-Yves Hogrel, have just published, in the Journal of Physiology, the results of a study*** to develop an ultrafast ultrasound sequence making it possible to “film” diaphragm performance during cervical magnetic stimulation (CMS) of the phrenic nerves in healthy subjects. What are the … [Read more]

M&M’s – Muscle Monday Seminar – 25 Jan. – Mario Amendola, PhD (France)

Ex vivo editing of human hematopoietic stem cells for erythroid expression of therapeutic proteins Monday 25 January 2021 – 12:00-13:00 Mario Amendola, PhD (Therapeutic genome editing’ group,UMRS951, Evry, France) Hosted by : Maria-Grazia Biferi   Prior registration for people outside the institute: medecine-umrs974-myologie@sorbonne-universite.fr    > More about this seminar

The Institute is recruiting a Fellow (M/F) for the service of Neuro-Myology

The service of Neuro-Myology of the reference center for rare neuromuscular diseases and muscle channelopathies at Institute of Myology, based in PitiĂ©-SalpĂŞtrière Hospital in Paris, France, offers a full-time fellow position as from January 2021, for a 6- or 12-month period. The fellow’s activity includes training and practice and encompasses the clinical, electromyographic and pathological … [Read more]

Dr Emmanuelle Lagrue, MD-PhD, pediatric neurologist, joins Généthon and I-Motion

Dr Emmanuelle Lagrue, MD-PhD, pediatric neurologist, simultaneously joins GĂ©nĂ©thon, the AFM-Telethon laboratory dedicated to gene therapy, as Senior Medical Manager, and I-Motion, the pediatric clinical trials platform of the Institute of Myology, as Deputy Director. Holder of a university degree in pediatric neurology and a doctorate in Sciences, Dr Emmanuelle Lagrue multiplies expertises. After her pediatric … [Read more]