Institute events

Floppy child 4th May 2023 at 16:00 Paris Time Dr Ulrike Schara-Schmidt (University Clinics Essen, Essen, Germany) Registration: https://zoom.us/webinar/register/WN_pY17Imm6S8-dAcL9JSXwQQ   Organised by EURO-NMD in collaboration with ERN-RND.

Fatigue in Neuromuscular Disorders 27th April 2023 at 16:00 Paris Time Dr. Nicole B.M. Voet (Radboud University Medical Center, the Netherlands) Registration: https://zoom.us/webinar/register/WN_CsaIEW5SQxyBoNKC5sYwbA   Organised by EURO-NMD in collaboration with ERN-RND.

Motor neuron disease: a neurodegenerative disorder poised for successful therapy development April 17th, 2023 – 12:00 – 13:00 Professor Dame Pamela Shaw (Professor of Neurology, Honorary Consultant Neurologist, Sheffield Teaching Hospitals NHS Foundation Trust, Director of the Sheffield Institute for Translational Neuroscience (SITraN), Director NIHR Sheffield Biomedical Research Centre, Director of the cross-faculty Neuroscience Research Institute … [Read more]

Inflammatory Myopathies 6th April 2023 – 4pmParis Time Prof. Werner Stenzel (Charité – Universitätsmedizin Berlin, Germany) Registration: https://zoom.us/webinar/register/WN_sdHfvA2tSei3Nx_MvL-_qQ   Organised by EURO-NMD in collaboration with ERN-RND

ERN EURO-NMD European Reference Networks (ERNs) are networks involving centers of expertise and health care providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialized treatment, as well as a concentration of knowledge and resources. Established in 2017 and co-funded by the European Commission, EURO-NMD is a European … [Read more]

The 27th meeting of the Société Francophone du Nerf Périphérique (SFNP) took place on 10 & 11 March 2023 in Paris Bercy in the salons of the Aveyron. They are organised this year in collaboration with the Société Francophone d’Electroneuromyographie (SFENMG). The days are intended for health professionals, clinicians and researchers on transversal themes from … [Read more]

Repeat Expansions Instigate Supply Chain Issues in Nucleus and Cytoplasm 13th March 2023 – 12:00 – 13:00 Eric T. Wang (Dept of Molecular Genetics & Microbioloy, University of Florida, USA) On prior registration for people outside the Institute of Myology: medecine-umrs974-myologie@sorbonne-universite.fr > More information on the presentation and the speaker   M&M’s – Muscle Monday Seminars … [Read more]

Muscle hyperexcitability and cramps 9th March 2023 – 4pm Paris time Dr. Federica Montagnese (Friedrich-Baur Institute, Department of Neurology, Ludwig-Maximilian University Munich, Germany) Registration : https://zoom.us/webinar/register/WN_2liSVqV-TRKsJIbvCsm8uw   Organised by EURO-NMD in collaboration with ERN-RND

Caveolae and Bin1 form ring-shaped platforms for T-tubule initiation 16 February 2023 – 16:00 Paris time Stéphane Vassilopoulos (Myology Centre for Research, Institute of Myology, France) Inscription : https://zoom.us/webinar/register/WN_CyiBCczsR62CeUudv278SA   Organised by EURO-NMD in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.

The Institute of Myology and AFM-Telethon organised a press conference on 7 February to promote muscle as a public health issue by announcing the project to create a Foundation of Myology and two dedicated events to raise awareness of this issue: Muscle Week and the “First « Muscle Conferences » on 1 June at the Economic, Social and … [Read more]