On the initiative of FSHD Europe association, in which the AFM-Telethon is involved, a European network of clinical trials in FSH has just been created with the aim of connecting European clinicians involved in FSH and to facilitate the setting up of future clinical trials, to make future treatments more accessible, etc.
This network is coordinated by Nicol Voermans, President (The Netherlands) and Pascal Laforêt,Vice-President (France) as well as George Padberg (The Netherlands) and Baziel van Engelen (The Netherlands), scientific advisors. This network would like to expand further and collaborate with other networks such as CTRN or Treat-NMD.
Access FSHD Europe website: FSHD Europe establishes European Trial Network
