The European reference network EURO-NMD conducted a survey to assess the needs and processes involved in the transition of patients with a neuromuscular disorder from childhood to adulthood:
- 67 healthcare professionals from twenty different European countries took part in this questionnaire-based study,
- the topics covered included the arrangements for this transition, the availability of training and psychological support, and the barriers to its implementation,
- a third of respondents reported having a specific structure in place to manage the child-to-adult transition within their centres,
- only 18% of them had received specific training,
The EURO-NMD network highlights numerous areas for improvement that could address the shortcomings of the system and the lack of harmonisation in this field.
